Palliative care services for people with dementia: A synthesis of the literature reporting the views and experiences of professionals and family carers

Mareeni Raymond*, Alex Warner, Nathan Davies, Steve Iliffe, Jill Manthorpe, Sam Ahmedzhai

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

32 Citations (Scopus)

Abstract

The experience of being a carer of a person with dementia at the end of life is expressed in these 12 accounts. This is a synthesis of the concerns and challenges for carers at the end of life. These accounts are often insightful and provide several views of carers' and professionals' experience. Having a close relationship as a carer gives a unique and poignant view. What emerges from this review is a range of perspectives that provide contrasting views of the heterogeneity of carers and professionals. This may be helpful for professionals and policy makers to consider when planning end-of-life care strategies for people with dementia and insights drawn from hearing directly from carers may be powerful learning tools.

Original languageEnglish
Pages (from-to)96-110
Number of pages15
JournalDementia (London, England)
Volume13
Issue number1
DOIs
Publication statusPublished - 2014

Keywords

  • Alzheimer's
  • carer
  • caring
  • dementia
  • narrative
  • palliative care
  • review

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