Participation in medical decision-making across Europe: An international longitudinal multicenter study

A. Bär Deucher; M. P. Hengartner; W. Kawohl; J. Konrad; B. Puschner; E. Clarke; M. Slade; V. Del Vecchio; G. Sampogna; A. Égerházi; null Süveges; M. Krogsgaard Bording; P. Munk-Jørgensen; W. Rössler; The CEDAR Study Group

doi:10.1016/j.eurpsy.2016.02.001

Participation in medical decision-making across Europe: An international longitudinal multicenter study

A. Bär Deucher^*, M. P. Hengartner, W. Kawohl, J. Konrad, B. Puschner, E. Clarke, M. Slade, V. Del Vecchio, G. Sampogna, A. Égerházi, Süveges, M. Krogsgaard Bording, P. Munk-Jørgensen, W. Rössler, The CEDAR Study Group

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

24 Citations (Scopus)

Abstract

Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods: The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results: We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 47.2% of total variance in the desire for participation (P <0.001). Averaged over time and independent of patient characteristics, London (mean = 2.27), Ulm (mean = 2.13) and Zurich (mean = 2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean = 1.97), where scores were in turn significantly higher than in Debrecen (mean = 1.56). The lowest scores were reported in Naples (mean = 1.14). Over time, the desire for participation in decision-making increased significantly in Zurich (b = 0.23) and decreased in Naples (b = -0.14). In all other centers, values remained stable. Conclusions: This study demonstrates that patients' desire for participation in decision-making varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.

Original language	English
Pages (from-to)	39-46
Number of pages	8
Journal	European Psychiatry
Volume	35
Early online date	7 Apr 2016
DOIs	https://doi.org/10.1016/j.eurpsy.2016.02.001
Publication status	Published - 1 May 2016

Keywords

Clinical decision-making
Multicenter study
Patient participation
Severe mental illness

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1016/j.eurpsy.2016.02.001

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Bär Deucher, A., Hengartner, M. P., Kawohl, W., Konrad, J., Puschner, B., Clarke, E., Slade, M., Del Vecchio, V., Sampogna, G., Égerházi, A., Süveges, Krogsgaard Bording, M., Munk-Jørgensen, P., Rössler, W., & The CEDAR Study Group (2016). Participation in medical decision-making across Europe: An international longitudinal multicenter study. European Psychiatry, 35, 39-46. https://doi.org/10.1016/j.eurpsy.2016.02.001

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title = "Participation in medical decision-making across Europe: An international longitudinal multicenter study",

abstract = "Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods: The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results: We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 47.2% of total variance in the desire for participation (P <0.001). Averaged over time and independent of patient characteristics, London (mean = 2.27), Ulm (mean = 2.13) and Zurich (mean = 2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean = 1.97), where scores were in turn significantly higher than in Debrecen (mean = 1.56). The lowest scores were reported in Naples (mean = 1.14). Over time, the desire for participation in decision-making increased significantly in Zurich (b = 0.23) and decreased in Naples (b = -0.14). In all other centers, values remained stable. Conclusions: This study demonstrates that patients' desire for participation in decision-making varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.",

keywords = "Clinical decision-making, Multicenter study, Patient participation, Severe mental illness",

author = "{B{\"a}r Deucher}, A. and Hengartner, {M. P.} and W. Kawohl and J. Konrad and B. Puschner and E. Clarke and M. Slade and {Del Vecchio}, V. and G. Sampogna and A. {\'E}gerh{\'a}zi and S{\"u}veges and {Krogsgaard Bording}, M. and P. Munk-J{\o}rgensen and W. R{\"o}ssler and {The CEDAR Study Group} and Jordan, {Harriet Isabel}",

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doi = "10.1016/j.eurpsy.2016.02.001",

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Bär Deucher, A, Hengartner, MP, Kawohl, W, Konrad, J, Puschner, B, Clarke, E , Slade, M, Del Vecchio, V, Sampogna, G, Égerházi, A, Süveges, Krogsgaard Bording, M, Munk-Jørgensen, P, Rössler, W & The CEDAR Study Group 2016, 'Participation in medical decision-making across Europe: An international longitudinal multicenter study', European Psychiatry, vol. 35, pp. 39-46. https://doi.org/10.1016/j.eurpsy.2016.02.001

TY - JOUR

T1 - Participation in medical decision-making across Europe

T2 - An international longitudinal multicenter study

AU - Bär Deucher, A.

AU - Hengartner, M. P.

AU - Kawohl, W.

AU - Konrad, J.

AU - Puschner, B.

AU - Clarke, E.

AU - Slade, M.

AU - Del Vecchio, V.

AU - Sampogna, G.

AU - Égerházi, A.

AU - Süveges, null

AU - Krogsgaard Bording, M.

AU - Munk-Jørgensen, P.

AU - Rössler, W.

AU - The CEDAR Study Group

AU - Jordan, Harriet Isabel

PY - 2016/5/1

Y1 - 2016/5/1

N2 - Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods: The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results: We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 47.2% of total variance in the desire for participation (P <0.001). Averaged over time and independent of patient characteristics, London (mean = 2.27), Ulm (mean = 2.13) and Zurich (mean = 2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean = 1.97), where scores were in turn significantly higher than in Debrecen (mean = 1.56). The lowest scores were reported in Naples (mean = 1.14). Over time, the desire for participation in decision-making increased significantly in Zurich (b = 0.23) and decreased in Naples (b = -0.14). In all other centers, values remained stable. Conclusions: This study demonstrates that patients' desire for participation in decision-making varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.

AB - Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods: The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results: We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 47.2% of total variance in the desire for participation (P <0.001). Averaged over time and independent of patient characteristics, London (mean = 2.27), Ulm (mean = 2.13) and Zurich (mean = 2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean = 1.97), where scores were in turn significantly higher than in Debrecen (mean = 1.56). The lowest scores were reported in Naples (mean = 1.14). Over time, the desire for participation in decision-making increased significantly in Zurich (b = 0.23) and decreased in Naples (b = -0.14). In all other centers, values remained stable. Conclusions: This study demonstrates that patients' desire for participation in decision-making varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.

KW - Clinical decision-making

KW - Multicenter study

KW - Patient participation

KW - Severe mental illness

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DO - 10.1016/j.eurpsy.2016.02.001

M3 - Article

AN - SCOPUS:84962477008

SN - 0924-9338

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SP - 39

EP - 46

JO - European Psychiatry

JF - European Psychiatry

ER -

Participation in medical decision-making across Europe: An international longitudinal multicenter study

Abstract

Keywords

UN SDGs

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