Patient involvement in the development of a handbook for moderate rheumatoid arthritis

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Abstract

Self-management is a key recommendation for people with rheumatoid arthritis (RA). Educational materials may support self-management, and increasingly patients are becoming involved with the development of these materials. The TITRATE trial compares the effectiveness of intensive management to standard care in patients with moderate RA across England. As part of the intensive management intervention, participants are given a handbook.
Aim and objectives

The aim of this study was to develop a handbook to support the intensive management. The objectives were to: (i) involve patients in the identification of relevant information for inclusion in the TITRATE handbook; (ii) ensure the content of the handbook is acceptable and accessible.
Design

We held an audio-taped workshop with RA patients. The transcript of the workshop was analysed using thematic content analysis.
Results

Five main themes were identified as follows: ‘rheumatoid arthritis treatment, perceptions of rheumatoid arthritis, the importance of individualized goals, benefits of self-management and the patient handbook’. Feedback from the workshop was incorporated into the handbook, and patients’ anonymous testimonies were added.
Conclusion

This study demonstrates that patient contribution to the development of educational material to support intensive management of RA is both feasible and valuable. A qualitative evaluation of the use and impact of the handbook with patients and practitioners is planned on completion of the TITRATE trial.
Original languageEnglish
Pages (from-to)1-10
JournalHealth expectations : an international journal of public participation in health care and health policy
Early online date18 Apr 2016
DOIs
Publication statusE-pub ahead of print - 18 Apr 2016

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