TY - JOUR
T1 - Patients’ and carers’ perspective of the impact of heart failure on quality of life: a qualitative study
AU - Nwosu, Winifred
AU - Hughes, Lyndsay
AU - Rajani, Ronak
AU - McDonagh, Theresa A.
AU - Driscoll, Elizabeth
PY - 2021/5/5
Y1 - 2021/5/5
N2 - Heart failure (HF) is a syndrome associated with high mortality and
morbidity. HF patients tend to be at a high risk of poor clinical and
psychosocial outcomes. This study aimed to capture patients’ and
carers perspectives of HF, the impact on their health reported QoL,
and the factors associated with their poor health outcomes. To
explore HF patients’ and carers’ views on their QoL since diagnosis.
This study used a cross-sectional, qualitative design with semi-
structured interviews conducted with participating patients and
carers. Thirteen adults (> 18 years) with HF and 21 carers were
interviewed over the telephone, following a semi-structured inter-
view schedule. Interviews were transcribed verbatim and analysed
using inductive thematic analysis. Three main themes were identi-
fied, with an overarching theme . Themes included impact on
patients’ lifestyle including diet, smoking and inability to part-take in
social activities, adjusting to HF diagnosis and co-morbidity manage-
ment, and psychological/mental health issues such as anxiety and
depression. Patients with HF are at high-risk of various issues which
can negatively impact their QoL. Additionally, Carers play a vital role
in the management of HF patients. Effective patient centred care
and better communication between patients, carers and healthcare
professionals is vital in HF management.
AB - Heart failure (HF) is a syndrome associated with high mortality and
morbidity. HF patients tend to be at a high risk of poor clinical and
psychosocial outcomes. This study aimed to capture patients’ and
carers perspectives of HF, the impact on their health reported QoL,
and the factors associated with their poor health outcomes. To
explore HF patients’ and carers’ views on their QoL since diagnosis.
This study used a cross-sectional, qualitative design with semi-
structured interviews conducted with participating patients and
carers. Thirteen adults (> 18 years) with HF and 21 carers were
interviewed over the telephone, following a semi-structured inter-
view schedule. Interviews were transcribed verbatim and analysed
using inductive thematic analysis. Three main themes were identi-
fied, with an overarching theme . Themes included impact on
patients’ lifestyle including diet, smoking and inability to part-take in
social activities, adjusting to HF diagnosis and co-morbidity manage-
ment, and psychological/mental health issues such as anxiety and
depression. Patients with HF are at high-risk of various issues which
can negatively impact their QoL. Additionally, Carers play a vital role
in the management of HF patients. Effective patient centred care
and better communication between patients, carers and healthcare
professionals is vital in HF management.
KW - Heart failure; quality of life; carers; informal carers; patients; heart failure management
UR - http://www.scopus.com/inward/record.url?scp=85105404575&partnerID=8YFLogxK
U2 - 10.1080/13548506.2021.1922719
DO - 10.1080/13548506.2021.1922719
M3 - Article
SN - 1354-8506
SP - 1
JO - Psychology, Health & Medicine
JF - Psychology, Health & Medicine
ER -