People with Intellectual Disabilities in Out-of-Area Specialist Hospitals: What Do Families Think?

TY - JOUR

T1 - People with Intellectual Disabilities in Out-of-Area Specialist Hospitals: What Do Families Think?

AU - Bonell, Simon

AU - Ali, Afia

AU - Hall, Ian

AU - Chinn, Deborah

AU - Patkas, Ioannis

PY - 2011/9

Y1 - 2011/9

N2 - Background: Little has been published regarding the views of family members of people with intellectual disabilities who are being cared for in out-of-area psychiatric hospitals. This study explores this area with specific reference to whether culturally appropriate services were being provided. Materials and Methods: Sixteen family members were interviewed about their views on the care their relative or partner was receiving in an out-of-area hospital. Transcripts were then analysed by the study team and themes identified. Results: Families expressed a wide range of views regarding out-of-area hospital care. Important themes identified were feelings of shame, concerns about safety, cultural needs not being met, lack of improvement and lack of involvement in care. Conclusions: This study highlights areas of inpatient care that family members felt were important. Views on negative aspects of care should guide areas for quality improvement initiatives for inpatient services.

AB - Background: Little has been published regarding the views of family members of people with intellectual disabilities who are being cared for in out-of-area psychiatric hospitals. This study explores this area with specific reference to whether culturally appropriate services were being provided. Materials and Methods: Sixteen family members were interviewed about their views on the care their relative or partner was receiving in an out-of-area hospital. Transcripts were then analysed by the study team and themes identified. Results: Families expressed a wide range of views regarding out-of-area hospital care. Important themes identified were feelings of shame, concerns about safety, cultural needs not being met, lack of improvement and lack of involvement in care. Conclusions: This study highlights areas of inpatient care that family members felt were important. Views on negative aspects of care should guide areas for quality improvement initiatives for inpatient services.

U2 - 10.1111/j.1468-3148.2010.00623.x

DO - 10.1111/j.1468-3148.2010.00623.x

M3 - Article

SN - 1360-2322

VL - 24

SP - 389

EP - 397

JO - JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES

JF - JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES

IS - 5

ER -