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Abstract
Background
The COVID-19 pandemic poses an unprecedented risk to the global population. Maternity care in the UK was subject to many iterations of guidance on how best to reconfigure services to keep women, their families and babies, and healthcare professionals safe. Parents who experience a pregnancy loss or perinatal death require particular care and support. PUDDLES is an international collaboration investigating the experiences of recently bereaved parents who suffered a late miscarriage, stillbirth, or neonatal death during the global COVID-19 pandemic, in seven countries. In this study, we aim to present early findings from qualitative work undertaken with recently bereaved parents in the United Kingdom about how access to healthcare and support services was negotiated during the pandemic.
Methods
In-depth semi-structured interviews were undertaken with parents (N=24) who had suffered a late miscarriage (n=5; all mothers), stillbirth (n=16; 13 mothers, 1 father, 1 joint interview involving both parents), or neonatal death (n=3; all mothers). Data were analysed using a template analysis with the aim of investigating bereaved parents’ access to services, care, and networks of support, during the pandemic after their bereavement.
Results
All parents had experience of utilising reconfigured maternity and/or neonatal, and bereavement care services during the pandemic. The themes utilised in the template analysis were: 1) The Shock & Confusion Associated with Necessary Restrictions to Daily Life; 2) Fragmented Care and Far Away Families; 3) Keeping Safe by Staying Away; and 4) Impersonal Care and Support Through a Screen. Results suggest access to maternity, neonatal, and bereavement care services were all significantly reduced, and parents’ experiences were notably affected by service reconfigurations.
Conclusions
Our findings, whilst preliminary, are important to document now, to help inform care and service provision as the pandemic continues and to provide learning for ongoing and future health system shocks. We draw conclusions on how to enable development of safe and appropriate services during this pandemic and any future health crises, to best support parents who experience a pregnancy loss or whose babies die.
The COVID-19 pandemic poses an unprecedented risk to the global population. Maternity care in the UK was subject to many iterations of guidance on how best to reconfigure services to keep women, their families and babies, and healthcare professionals safe. Parents who experience a pregnancy loss or perinatal death require particular care and support. PUDDLES is an international collaboration investigating the experiences of recently bereaved parents who suffered a late miscarriage, stillbirth, or neonatal death during the global COVID-19 pandemic, in seven countries. In this study, we aim to present early findings from qualitative work undertaken with recently bereaved parents in the United Kingdom about how access to healthcare and support services was negotiated during the pandemic.
Methods
In-depth semi-structured interviews were undertaken with parents (N=24) who had suffered a late miscarriage (n=5; all mothers), stillbirth (n=16; 13 mothers, 1 father, 1 joint interview involving both parents), or neonatal death (n=3; all mothers). Data were analysed using a template analysis with the aim of investigating bereaved parents’ access to services, care, and networks of support, during the pandemic after their bereavement.
Results
All parents had experience of utilising reconfigured maternity and/or neonatal, and bereavement care services during the pandemic. The themes utilised in the template analysis were: 1) The Shock & Confusion Associated with Necessary Restrictions to Daily Life; 2) Fragmented Care and Far Away Families; 3) Keeping Safe by Staying Away; and 4) Impersonal Care and Support Through a Screen. Results suggest access to maternity, neonatal, and bereavement care services were all significantly reduced, and parents’ experiences were notably affected by service reconfigurations.
Conclusions
Our findings, whilst preliminary, are important to document now, to help inform care and service provision as the pandemic continues and to provide learning for ongoing and future health system shocks. We draw conclusions on how to enable development of safe and appropriate services during this pandemic and any future health crises, to best support parents who experience a pregnancy loss or whose babies die.
| Original language | English |
|---|---|
| Article number | 840 |
| Pages (from-to) | 1-13 |
| Journal | BMC Pregnancy and Childbirth |
| Volume | 21 |
| Issue number | 1 |
| Early online date | 22 Dec 2021 |
| DOIs | |
| Publication status | Published - 22 Dec 2021 |
Keywords
- Pregnancy Loss
- Perinatal Death
- Miscarriage
- Stillbirth
- Neonatal Death
- COVID-19
- Maternity Care
- Service Reconfiguration
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Preliminary findings on the experiences of care for women who suffered early pregnancy losses during the COVID-19 pandemic: A qualitative study
Silverio, S. A., George-Carey, R., Memtsa, M., Kent-Nye, F. E., Magee, L., Sheen, K. S., Burgess, K., Oza, M., Storey, C., Sandall, J., The PUDDLES UK Collaboration, Easter, A., von Dadelszen, P. & Jurković, D., 9 Aug 2024, In: BMC Pregnancy and Childbirth. 24, 522, p. 1-16 1 p., 522.Research output: Contribution to journal › Article › peer-review
Open AccessFile4 Citations (Scopus)122 Downloads (Pure)