TY - JOUR
T1 - Promoting Resilience and Well-being through Co-design (The PRIDE Project)
T2 - Protocol for the Development and Preliminary Evaluation of a Prototype Resilience-Based Intervention for Sexual and Gender Minority Youth
AU - Lucassen, Mathijs F.G.
AU - Samra, Rajvinder
AU - Rimes, Katharine A.
AU - Brown, Katherine E.
AU - Wallace, Louise M.
N1 - Funding Information:
This study was funded in March 2021. We received a favorable opinion for our ethics application for phase 1 of the study from the Open University’s human research ethics committee in August 2021. We will apply for further approval for phases 2 and 3. The study commenced on September 1, 2021. Participant recruitment for the study began in October 2021, and all data for the study should be gathered by early 2023 (see Table 2 for details).
Funding Information:
The authors would like to thank the stakeholders, organizational partners, and academic advisors for this project, such as our partner LGBTQ+ (lesbian, gay, bisexual, trans, queer) organizations and third-sector service providers. The authors also thank their other partners, which include 2 county councils, a clinical commissioning group, and the Centre for Policing Research and Learning (at The Open University). They also acknowledge their academic advisors, namely, Professor Elizabeth McDermott (Birmingham University), Dr Dan Baker (youth work expert), and the youth e-therapy research team (Professor Sally Merry, Associate Professor Theresa Fleming, Dr Karolina Stasiak, and Dr Matthew Shepherd) in New Zealand. The funding for this project was provided by the UK’s Medical Research Council (grant reference MR/V031449/1).
Funding Information:
There has been considerable research describing the mental health challenges SGMY face, but little research has been conducted on interventions designed to make a difference for SGMY. For example, 2 prior systematic reviews of psychosocial treatments have previously identified only a single evaluated digital tool to support the mental well-being of SGMY [19,20], and a third more recent and inclusive systematic review highlighted only 5 interventions that broadly targeted mental health–related problems [22]. Fortunately, this situation is rapidly changing, with a recent research protocol highlighting an emerging interest in gamified health interventions for SGM individuals [56]. For example, an intervention is being pilot-tested among SGMY (aged 14-18 years) in the United States, with the aim of improving help-seeking behavior and coping [57]. Our proposed toolkit is therefore timely and could be useful in the United Kingdom, where there is an absence of evidence-informed digital interventions to support the well-being of SGMY. This project is funded by the UK’s Medical Research Council under the Public Health Intervention Development scheme. This scheme involves developing a novel intervention, and coproduction with relevant stakeholders is expected. Within the rules of the scheme, limited resources (approximately 15% of the project’s overall costs) are directed toward acceptability and feasibility research. Therefore, the emphasis of this project is directed toward creating a new toolkit (during phases 1 and 2), with only a preliminary emphasis placed on evaluation (in phase 3).
Publisher Copyright:
©Mathijs F G Lucassen, Rajvinder Samra, Katharine A Rimes, Katherine E Brown, Louise M Wallace.
PY - 2022/2
Y1 - 2022/2
N2 - Background: Sexual and gender minority youth (SGMY) are at an increased risk of a range of mental health problems. However, few evidence-informed interventions have been developed specifically to support their mental well-being. Interventions that are evidence-informed for the general population and are fine-tuned specifically with SGMY in mind proffer considerable potential. A particular opportunity lies in the delivery of engaging interventions on the web, where the focus is on enhancing the coping skills and building the resilience of SGMY, in a way that is directly relevant to their experiences. On the basis of earlier work related to an intervention called Rainbow SPARX (Smart, Positive, Active, Realistic, X-factor thoughts), we seek to create a new resource, especially for SGMY in the United Kingdom. Objective: This project has 3 main objectives. First, together with SGMY as well as key adult experts, we aim to co-design a media-rich evidence-informed web-based SGMY well-being prototype toolkit aimed at those aged between 13 and 19 years. Second, we will explore how the web-based toolkit can be used within public health systems in the United Kingdom by SGMY and potentially other relevant stakeholders. Third, we aim to conduct a preliminary evaluation of the toolkit, which will inform the design of a future effectiveness study. Methods: The first objective will be met by conducting the following: approximately 10 interviews with SGMY and 15 interviews with adult experts, a scoping review of studies focused on psychosocial coping strategies for SGMY, and co-design workshops with approximately 20 SGMY, which will inform the creation of the prototype toolkit. The second objective will be met by carrying out interviews with approximately 5 selected adult experts and 10 SGMY to explore how the toolkit can be best used and to determine the parameters and user-generated standards for a future effectiveness trial. The final objective will be met with a small-scale process evaluation, using the think out loud methodology, conducted with approximately 10 SGMY. Results: The study commenced on September 1, 2021, and data gathering for phase 1 began in October 2021. Conclusions: A considerable body of work has described the issues faced by the SGMY. However, there is a dearth of research seeking to develop interventions for SGMY so that they can thrive. This project aims to co-design such an intervention. Trial Registration: Research Registry Reference researchregistry6815; https://www.researchregistry.com/browse-the-registry#home/registrationdetails/609e81bda4a706001c94b63a/ International Registered Report Identifier (IRRID): PRR1-10.2196/31036.
AB - Background: Sexual and gender minority youth (SGMY) are at an increased risk of a range of mental health problems. However, few evidence-informed interventions have been developed specifically to support their mental well-being. Interventions that are evidence-informed for the general population and are fine-tuned specifically with SGMY in mind proffer considerable potential. A particular opportunity lies in the delivery of engaging interventions on the web, where the focus is on enhancing the coping skills and building the resilience of SGMY, in a way that is directly relevant to their experiences. On the basis of earlier work related to an intervention called Rainbow SPARX (Smart, Positive, Active, Realistic, X-factor thoughts), we seek to create a new resource, especially for SGMY in the United Kingdom. Objective: This project has 3 main objectives. First, together with SGMY as well as key adult experts, we aim to co-design a media-rich evidence-informed web-based SGMY well-being prototype toolkit aimed at those aged between 13 and 19 years. Second, we will explore how the web-based toolkit can be used within public health systems in the United Kingdom by SGMY and potentially other relevant stakeholders. Third, we aim to conduct a preliminary evaluation of the toolkit, which will inform the design of a future effectiveness study. Methods: The first objective will be met by conducting the following: approximately 10 interviews with SGMY and 15 interviews with adult experts, a scoping review of studies focused on psychosocial coping strategies for SGMY, and co-design workshops with approximately 20 SGMY, which will inform the creation of the prototype toolkit. The second objective will be met by carrying out interviews with approximately 5 selected adult experts and 10 SGMY to explore how the toolkit can be best used and to determine the parameters and user-generated standards for a future effectiveness trial. The final objective will be met with a small-scale process evaluation, using the think out loud methodology, conducted with approximately 10 SGMY. Results: The study commenced on September 1, 2021, and data gathering for phase 1 began in October 2021. Conclusions: A considerable body of work has described the issues faced by the SGMY. However, there is a dearth of research seeking to develop interventions for SGMY so that they can thrive. This project aims to co-design such an intervention. Trial Registration: Research Registry Reference researchregistry6815; https://www.researchregistry.com/browse-the-registry#home/registrationdetails/609e81bda4a706001c94b63a/ International Registered Report Identifier (IRRID): PRR1-10.2196/31036.
KW - Adolescent
KW - Depression
KW - E-therapy
KW - Gender
KW - LGBT
KW - Online
KW - Public health
KW - Resilience
KW - Sexuality
KW - Youth
UR - http://www.scopus.com/inward/record.url?scp=85124181104&partnerID=8YFLogxK
U2 - 10.2196/e31036
DO - 10.2196/e31036
M3 - Article
AN - SCOPUS:85124181104
SN - 1929-0748
VL - 11
JO - JMIR research protocols
JF - JMIR research protocols
IS - 2
M1 - e31036
ER -