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Reducing stigma and discrimination associated with COVID-19: Early stage pandemic rapid review and practical recommendations

Research output: Contribution to journalArticlepeer-review

P. C. Gronholm, M. Nose, W. H. Van Brakel, J. Eaton, B. Ebenso, K. Fiekert, M. Milenova, C. Sunkel, C. Barbui, G. Thornicroft

Original languageEnglish
JournalEpidemiology and Psychiatric Sciences
DOIs
Accepted/In press2021
Published28 Jan 2021

Bibliographical note

Publisher Copyright: © 2021 American Medical Association. All rights reserved. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

King's Authors

Abstract

Aims To develop recommendations for strategies and interventions to reduce stigma and discrimination related to COVID-19, through reviewing and synthesising evidence in relation to COVID-19 and other disease outbreaks and infectious/stigmatised conditions from systematic reviews and primary studies and recommendations from additional materials. Methods Rapid review, drawing on the World Health Organization's (WHO) methodology for developing interim guidelines during health emergencies. PubMed/MEDLINE, PsycINFO, Cochrane Central and Campbell Collaboration searched up to mid-April 2020. Searches were supplemented by reference-searching and expert recommendations. Searches were designed to identify: (1) systematic reviews (10 years), or (2) primary intervention-studies (no date limit) reporting evidence on anti-stigma interventions (in relation to COVID-19 or other infectious/stigmatised conditions), or (3) additional relevant materials. Data were extracted on population, intervention, outcome, and results. These data were compiled into evidence summary tables and narrative overviews. Recommendations on strategies for COVID-19 stigma-reduction were developed using the WHO 'Evidence to Decision' framework approach. The review protocol was registered with PROSPERO (registration ID: CRD42020177677). Results The searches identified a total of 4150 potentially relevant records, from which 12 systematic reviews and 29 additional articles were included. Overarching considerations and specific recommendations focus on: 1) language/words used in relation to COVID-19 and affected people; 2) media/journalistic practices; 3) public health interventions; 4) targeted public health interventions for key groups; and 5) involving communities and key stakeholders. Conclusions These recommendations represent the first consolidated evidence-based guidance on stigma and discrimination reduction in relation to COVID-19. Mitigating the impact of stigma is critical in reducing distress and negative experiences, and strengthening communities' resolve to work together during exceptional circumstances. Ultimately, reducing stigma helps addressing structural inequalities that drive marginalisation and exacerbate both health risks and the impact of stigma. Administrations and decision makers are urged to consider integrating these recommendations into the ongoing COVID-19 response.

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