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Reflective insights from developing a palliative care children and young people’s advisory group

Research output: Contribution to journalArticlepeer-review

Original languageEnglish
Pages (from-to)621-624
Number of pages4
JournalPalliative Medicine
Volume35
Issue number3
DOIs
Accepted/In press2021
PublishedMar 2021

Bibliographical note

Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This project was awarded an Enabling Involvement Fund Grant from the National Institute for Health Research Design Service to cover running costs. Publisher Copyright: © The Author(s) 2021. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

King's Authors

Abstract

Background:
The importance of actively involving patient and public members throughout the different stages of palliative care and health research projects is widely acknowledged, however patient and public involvement work rarely considers insight from children and young people. Although this is becoming increasingly recognised in other areas of research, there is currently no structured guidance on how to best involve children and young people in palliative care research.

Aim:
To plan and deliver a Young People’s Advisory Group in palliative care and health research at a secondary school.

Findings:
Attending an after-school ‘Health and Social Research Methods Club’ for 11 weeks benefitted children and researchers. Children were taught about data collection methods, data analysis and ethics in health research and used these skills to provide valuable feedback which has been implemented in current palliative care research projects. Children took part in considered discussions around palliative care topics and enjoyed attending the group.

Conclusion:
This project has equipped researchers with skills and provided a structured template for future Young People’s Advisory Groups, ensuring the unique voices of children and young people are considered and valued in future palliative care research.

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