Research led by participants: A new social contract for a new kind of research

Effy Vayena; Roger Brownsword; Sarah Jane Edwards; Bastian Greshake; Jeffrey P. Kahn; Navjyot Ladher; Jonathan Montgomery; Daniel O'Connor; Onora O'Neill; Martin P. Richards; Annette Rid; Mark Sheehan; Paul Wicks; John Tasioulas

doi:10.1136/medethics-2015-102663

Research led by participants: A new social contract for a new kind of research

Effy Vayena^*, Roger Brownsword, Sarah Jane Edwards, Bastian Greshake, Jeffrey P. Kahn, Navjyot Ladher, Jonathan Montgomery, Daniel O'Connor, Onora O'Neill, Martin P. Richards, Annette Rid, Mark Sheehan, Paul Wicks, John Tasioulas

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

66 Citations (Scopus)

Abstract

In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.

Original language	English
Number of pages	4
Journal	Journal of Medical Ethics
DOIs	https://doi.org/10.1136/medethics-2015-102663
Publication status	Published - 30 Mar 2015

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abstract = "In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.",

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AU - Vayena, Effy

AU - Brownsword, Roger

AU - Edwards, Sarah Jane

AU - Greshake, Bastian

AU - Kahn, Jeffrey P.

AU - Ladher, Navjyot

AU - Montgomery, Jonathan

AU - O'Connor, Daniel

AU - O'Neill, Onora

AU - Richards, Martin P.

AU - Rid, Annette

AU - Sheehan, Mark

AU - Wicks, Paul

AU - Tasioulas, John

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JO - Journal of Medical Ethics

JF - Journal of Medical Ethics

ER -

Research led by participants: A new social contract for a new kind of research

Abstract

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