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Research Outputs

  1. 2022
  2. Palliative Care in 2020 & Beyond Workshop: an expert symposium to develop palliative care advocacy in Turkey

    Ahmed, F., Kutluk, T., Kirazli, M., Yurduşen, S., Cemaloğlu, M., Boufkhed, S., Şengelen, M., Aydın, B., Sullivan, R. & Harding, R., Dec 2022, In: Journal of Cancer Policy. 34, 100361.

    Research output: Contribution to journalArticlepeer-review

  3. Integrated primary palliative care in Nigeria- perspectives of patients, families and providers

    Afolabi, O. A., Nkhoma, K., Soyannwo, O., Aje, A., Ogunniyi, A., Harding, R. & Maddocks, M., Oct 2022, In: Journal of pain and symptom management. 64, 4, p. 319-329 11 p.

    Research output: Contribution to journalArticlepeer-review

  4. Care Needs and Symptoms Burden of Breast Cancer Patients in Jordan: A Cross-Sectional Study

    Shamieh, O., Alarjeh, G., Li, H., Abu Naser, M., Abu Farsakh, F., Abdel-Razeq, R., Edilbi, A., Al-Ani, R., Harding, R. & Guo, P., Sep 2022, In: International Journal of Environmental Research and Public Health. 19, 17, 10787.

    Research output: Contribution to journalArticlepeer-review

  5. ABC of LGBT+ Inclusive Communication: A guide for health and social care professionals

    Braybrook, D., Bristowe, K., Timmins, L., Roach, A., Day, E., Clift, P., Rose, R., Marshall, S., Johnson, K., Sleeman, K. & Harding, R., 31 Aug 2022, 16 p.

    Research output: Other contribution

  6. Achieving child-centred care for children and young people with life-limiting and life-threatening conditions—a qualitative interview study

    Coombes, L., Braybrook, D., Roach, A., Scott, H., Harðardóttir, D., Bristowe, K., Ellis-Smith, C., Bluebond-Langner, M., Fraser, L. K., Downing, J., Farsides, B., Murtagh, F. E. M., Harding, R. & on behalf of C-POS, 12 Aug 2022, In: European Journal of Pediatrics.

    Research output: Contribution to journalArticlepeer-review

  7. A Systematic Review and Narrative Synthesis of the Evidence Underpinning Theoretical Perspectives and Cultural Influences on Forgiveness in Palliative Care

    Phoon, J., Tan, Y. P. & Harding, R., 1 Aug 2022, In: Journal of palliative medicine. 25, 8, p. 1282-1308 27 p.

    Research output: Contribution to journalReview articlepeer-review

  8. A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs

    Nkhoma, K. B., Cook, A., Giusti, A., Farrant, L., Petrus, R., Petersen, I., Gwyther, L., Venkatapuram, S. & Harding, R., 13 Jul 2022, In: BMJ Open. 12, 7, p. e054386 e054386.

    Research output: Contribution to journalArticlepeer-review

  9. Developing a global practice-based framework of person-centred care from primary data: a cross-national qualitative study with patients, caregivers and healthcare professionals

    Giusti, A., Pukrittayakamee, P., Alarja, G., Farrant, L., Hunter, J., Mzimkulu, O., Gwyther, L., Williams, N., Wannarit, K., Abusalem, L., Alajarmeh, S., Alrjoub, W., Thongchot, L., Janwanishstaporn, S., Edilbi, A., Al-Ani, R., Shamieh, O., Guo, P., Bashan Nkhoma, K., Venkatapuram, S. & 1 others, Harding, R., 13 Jul 2022, In: BMJ Global Health . 7, 7, e008843.

    Research output: Contribution to journalArticlepeer-review

  10. COVID-19: Impact on Pediatric Palliative Care

    Scott, H. M., Coombes, L., Braybrook, D., Roach, A., Harðardóttir, D., Bristowe, K., Ellis-Smith, C., Higginson, I., Gao, W., Bluebond-Langner, M., Farsides, B., Murtagh, F. EM., Fraser, L. K. & Harding, R., 1 Jul 2022, In: Journal of pain and symptom management. 64, 1, p. e1-e5

    Research output: Contribution to journalArticlepeer-review

  11. Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries

    Namisango, E., Bristowe, K., Murtagh, F. E. M., Downing, J., Powell, R. A., Atieno, M., Abas, M., Ali, Z., Luyirika, E. B. K., Meiring, M., Mwangi-Powell, F. N., Higginson, I. J. & Harding, R., 1 Jul 2022, In: Palliative medicine. 36, 7, p. 1140-1153 14 p.

    Research output: Contribution to journalArticlepeer-review

  12. Positive Outcomes: Validity, reliability and responsiveness of a novel person‐centred outcome measure for people with HIV

    EMERGE Consortium, Horizon 2020, Harding, R., Jones, C. I., Bremner, S., Bristowe, K., West, B., Siegert, R. J., O’Brien, K. K. & Whetham, J., Jul 2022, In: HIV MEDICINE. 23, 6, p. 673-683 11 p.

    Research output: Contribution to journalArticlepeer-review

  13. Does the impact of bereavement vary between same and different gender partnerships? A representative national, cross-sectional study

    Timmins, L., Pitman, A., King, M., Gao, W., Johnson, K., Yu, P., Braybrook, D., Roach, A., Marshall, S., Day, E., Rose, R., Clift, P., Almack, K., Yi, D. H., Bristowe, K. & Harding, R., 27 May 2022, (E-pub ahead of print) In: Psychological Medicine. p. 1-9 9 p.

    Research output: Contribution to journalArticlepeer-review

  14. The meaning of ‘normality’ among children and young people with life-limiting or life threatening conditions

    Braybrook, D., Coombes, L., Roach, A., Harðardóttir, D., Scott, H., Bluebond-Langner, M., Bristowe, K. & Harding, R., 26 May 2022.

    Research output: Contribution to conference typesAbstractpeer-review

  15. A prospective cohort study assessing aggressive interventions at the end-of-life among patients with solid metastatic cancer

    COMPASS study group, Malhotra, C., Bundoc, F., Chaudhry, I., Teo, I., Ozdemir, S. & Finkelstein, E., 16 May 2022, In: BMC Palliative Care. 21, 1, p. 73 73.

    Research output: Contribution to journalArticlepeer-review

  16. Prevalence, severity, and risk factors of disability among adults living with HIV accessing routine outpatient HIV care in London, United Kingdom (UK): A cross-sectional self-report study

    Brown, D. A., O'Brien, K. K., Harding, R., Sedgwick, P. M., Nelson, M., Boffito, M. & Lewko, A., 12 May 2022, In: PLoS ONE. 17, 5 May, p. e0267271 e0267271.

    Research output: Contribution to journalArticlepeer-review

  17. Building evidence and capacity in global health palliative care

    Harding, R., 28 Apr 2022, In: ecancermedicalscience. 16, p. 1378

    Research output: Contribution to journalArticlepeer-review

  18. Health literacy in communication, decision-making and outcomes among cancer patients, their families and clinicians in India: A multicentre cross-sectional qualitative study

    Harding, R., Salins, N., Sharan, K. & Ekstrand, M. L., 7 Mar 2022, In: Psycho-Oncology. 31, 3, p. 532-540 9 p.

    Research output: Contribution to journalArticlepeer-review

  19. Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability among people living with Long COVID - protocol for a mixed-methods study

    O'Brien, K. K., Brown, D. A., Bergin, C., Erlandson, K. M., Vera, J. H., Avery, L., Carusone, S. C., Cheung, A. M., Goulding, S., Harding, R., McCorkell, L., O'Hara, M., Robinson, L., Thomson, C., Wei, H., St Clair-Sullivan, N., Torres, B., Bannan, C., Roche, N., Stokes, R. & 2 others, Gayle, P. & Solomon, P., 7 Mar 2022, In: BMJ Open. 12, 3, p. e060826 e060826.

    Research output: Contribution to journalArticlepeer-review

  20. Conceptual Models and Mechanisms of Action that Underpin End-of-Life Care Interventions to Improve Spiritual Well-Being

    Liu, V. L-X., Lin, S-C. & Harding, R., 1 Jan 2022, In: Journal of palliative medicine. 25, 1, p. 106-118 13 p.

    Research output: Contribution to journalReview articlepeer-review

  21. COVID-19 mortality among people with diagnosed HIV compared to those without during the first wave of the COVID-19 pandemic in England

    Brown, A. E., Croxford, S. E., Nash, S., Khawam, J., Kirwan, P., Kall, M., Bradshaw, D., Sabin, C., Miller, R. F., Post, F. A., Harding, R., Collins, S., Waters, L., Asboe, D., Chadwick, D. R., Delpech, V. & Sullivan, A. K., Jan 2022, In: HIV MEDICINE. 23, 1, p. 90-102 13 p.

    Research output: Contribution to journalArticlepeer-review

  22. Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner Perspectives

    Scott, H., Coombes, L., Braybrook, D., Roach, A., Harðardóttir, D., Bristowe, K., Ellis-Smith, C., Chambers, L., Bluebond-Langner, M., Farsides, B., Murtagh, F. & Harding, R., 2022.

    Research output: Contribution to conference typesPosterpeer-review

  23. Symptom prevalence and burden, and the risk of depression among patients with advanced cancer attending two South African oncology units

    Farrant, L., Harding, R., Anderson, D., Greeff, L., Kassanjee, R., Krause, R., Mohamed, Z., Parkes, J. & Gwyther, L., 2022, In: ecancermedicalscience. 16, 1349.

    Research output: Contribution to journalArticlepeer-review

  24. The Impact of COVID-19 on Palliative Care for Children Within the UK

    Scott, H., Coombes, L., Braybrook, D., Roach, A., Harðardóttir, D., Bristowe, K., Ellis-Smith, C., Bluebond-Langner, M., Farsides, B., Murtagh, F., Fraser, L. & Harding, R., 2022.

    Research output: Contribution to conference typesAbstractpeer-review

  25. 2021
  26. Consensus statement on the role of health systems in advancing the long-term well-being of people living with HIV

    Lazarus, J. V., Safreed-Harmon, K., Kamarulzaman, A., Anderson, J., Leite, R. B., Behrens, G., Bekker, L. G., Bhagani, S., Brown, D., Brown, G., Buchbinder, S., Caceres, C., Cahn, P. E., Carrieri, P., Caswell, G., Cooke, G. S., Monforte, A. DA., Dedes, N., del Amo, J., Elliott, R. & 25 others, El-Sadr, W. M., Fuster-Ruiz de Apodaca, M. J., Guaraldi, G., Hallett, T., Harding, R., Hellard, M., Jaffar, S., Kall, M., Klein, M., Lewin, S. R., Mayer, K., Pérez-Molina, J. A., Moraa, D., Naniche, D., Nash, D., Noori, T., Pozniak, A., Rajasuriar, R., Reiss, P., Rizk, N., Rockstroh, J., Romero, D., Sabin, C., Serwadda, D. & Waters, L., Dec 2021, In: Nature Communications. 12, 1, 4450.

    Research output: Contribution to journalReview articlepeer-review

  27. Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial

    Matthys, O., De Vleminck, A., Dierickx, S., Deliens, L., Van Goethem, V., Lapeire, L., Groenvold, M., Lund, L., Arnfeldt, C. M., Sengeloev, L., Pappot, H., Johnsen, A. T., Guerin, S., Larkin, P. J., Jordan, C., Connolly, M., D’Alton, P., Costantini, M., Di Leo, S., Guberti, M. & 17 others, Turola, E., van der Heide, A., Witkamp, E., Rietjens, J., van der Wel, M., Brazil, K., Prue, G., Reid, J., Scott, D., Bristowe, K., Harding, R., Normand, C., May, P., Cronin, C., Northouse, L., Hudson, P. & Cohen, J., Dec 2021, In: BMC Palliative Care. 20, 1, 193.

    Research output: Contribution to journalArticlepeer-review

  28. Validity and reliability of the English and translated Chinese versions of the Integrated Palliative care Outcome Scale (IPOS) in Singapore

    Long, V. J. E., Cheung, Y. B., Qu, D., Lim, K., Lee, G., Yee, A. C. P., Guo, P., Harding, R. & Yang, G. M., Dec 2021, In: BMC Palliative Care. 20, 1, 40.

    Research output: Contribution to journalArticlepeer-review

  29. Why does palliative care need to consider access and care for LGBTQ people?

    Wakefield, D., Kane, C. E. C., Chidiac, C., Braybrook, D. & Harding, R., Dec 2021, In: Palliative medicine. 35, 10, p. 1730-1732 3 p.

    Research output: Contribution to journalEditorialpeer-review

  30. Changing Mortality and Place of Death in Response to Refugee Influx: A Population-Based Cross-Sectional Study in Jordan, 2005-2016

    Guo, P., Chukwusa, E., Asad, M., Nimri, O., Arqoub, K., Alajarmeh, S., Mansour, A., Sullivan, R., Shamieh, O. & Harding, R., 1 Nov 2021, In: Journal of palliative medicine. 24, 11, p. 1616-1625 10 p.

    Research output: Contribution to journalArticlepeer-review

  31. Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review

    Bayly, J., Bone, A. E., Ellis-Smith, C., Tunnard, I., Yaqub, S., Yi, D., Nkhoma, K. B., Cook, A., Combes, S., Bajwah, S., Harding, R., Nicholson, C., Normand, C., Ahuja, S., Turrillas, P., Kizawa, Y., Morita, T., Nishiyama, N., Tsuneto, S., Ong, P. & 3 others, Higginson, I. J., Evans, C. J. & Maddocks, M., Nov 2021, In: BMJ Open. 11, 12, e048417.

    Research output: Contribution to journalArticlepeer-review

  32. HeAlth System StrEngThening in four sub-Saharan African countries (ASSET) to achieve high-quality, evidence-informed surgical, maternal and newborn, and primary care: protocol for pre-implementation phase studies

    Seward, N., Hanlon, C., Abdella, A., Abrahams, Z., Alem, A., Araya, R., Bachmann, M., Bekele, A., Bogale, B., Brima, N., Chibanda, D., Curran, R., Davies, J., Beyene, A., Fairall, L., Farrant, L., Frissa, S., Gallagher, J., Gao, W., Gwyther, L. & 18 others, Harding, R., Kartha, M. R., Leather, A., Lund, C., Marx, M., Nkhoma, K., Murdoch, J., Petersen, I., Petrus, R., van Rensburg, A., Sandall, J., Sevdalis, N., Sheenan, A., Tadesse, A., Thornicroft, G., Verhey, R., Willott, C. & Prince, M., 31 Dec 2022, In: Global Health Action. 15, 1, 1987044.

    Research output: Contribution to journalArticlepeer-review

  33. Disability and Self-care Living Strategies Among Adults Living With HIV During the COVID-19 Pandemic

    O'Brien, K. K., Bayoumi, A. M., Carusone, S. C., Davis, A. M., Aubry, R., Avery, L., Solomon, P., Erlandson, K. M., Bergin, C., Harding, R., Brown, D. A., Vera, J. H. & Hanna, S., 14 Sep 2021, In: Research square.

    Research output: Contribution to journalArticle

  34. Discordance Between Advanced Cancer Patients' Perceived and Preferred Roles in Decision Making and its Association with Psychological Distress and Perceived Quality of Care

    COMPASS study group, Ozdemir, S., Tian, Y., Malhotra, C., Harding, R., Koh, G. C. H., Kumarakulasinghe, N. B., Lee, L. H., Mon, S. W. & Finkelstein, E., Sep 2021, In: The patient. 14, 5, p. 581-589 9 p.

    Research output: Contribution to journalArticlepeer-review

  35. COVID-19 and palliative care capacity, African region

    Afolabi, O. A., Abboah-Offei, M., Namisango, E., Chukwusa, E., Oluyase, A. O., Luyirika, E. B. K., Harding, R. & Nkhoma, K., 1 Aug 2021, In: Bulletin of the World Health Organization. 99, 8, p. 542-542A

    Research output: Contribution to journalEditorialpeer-review

  36. Quality of life among advanced cancer patients in Vietnam: a multicenter cross-sectional study

    Huyen, B. T., Van Anh, P. T., Duong, L. D., The, T. H. N., Guo, P., Van Thuc, P., Khue, L. N., Krakauer, E. L. & Harding, R., Aug 2021, In: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 29, 8, p. 4791-4798 8 p.

    Research output: Contribution to journalArticlepeer-review

  37. “I Wish I Could Die So I Would Not Be in Pain”: A Qualitative Study of Palliative Care Needs Among People With Cancer or HIV/AIDS in Vietnam and Their Caregivers

    Pham, V. A., Nguyen, H., Krakauer, E. & Harding, R., Aug 2021, In: Journal of pain and symptom management. 62, 2, p. 364-372 9 p.

    Research output: Contribution to journalArticlepeer-review

  38. Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis

    Sleeman, K. E., Timms, A., Gillam, J., Anderson, J. E., Harding, R., Sampson, E. L. & Evans, C. J., 14 Jul 2021, (E-pub ahead of print) In: BMC Palliative Care. 20, 1, 108.

    Research output: Contribution to journalArticlepeer-review

  39. Prevalence of Life-Limiting and Life-Threatening Illness and Associated Palliative Care Needs Among Hospital Inpatients in Sudan

    Gafer, N., Marhoom, M., Siddig, S., Ali, H., Mursi, M., Harðardóttir, D. & Harding, R., 7 Jul 2021, (Accepted/In press) In: Journal of pain and symptom management.

    Research output: Contribution to journalArticlepeer-review

  40. Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey

    Lin, C. P., Boufkhed, S., Kizawa, Y., Mori, M., Hamzah, E., Aggarwal, G., Namisango, E., Higginson, I. J., Goh, C. & Harding, R., 1 Jul 2021, In: American Journal of Hospice and Palliative Medicine. 38, 7, p. 861-868 8 p.

    Research output: Contribution to journalArticlepeer-review

  41. Symptom prevalence, burden and correlates among people living with HIV in Vietnam: a two-centre self-report study

    Le Dai, D., Pham, T. V. A., Bui, T. T. H., Than, T. N. H., Pham, V. T., Luong, N. K., Harding, R. & Krakauer, E. L., 16 Jun 2021, (E-pub ahead of print) In: AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV. 34, 7

    Research output: Contribution to journalArticlepeer-review

  42. Platform encounters: A study of digitised patient follow-up in HIV care

    eMERGE Consortium, Marent, B. & Henwood, F., Jun 2021, In: Sociology of Health and Illness. 43, 5, p. 1117-1135 19 p.

    Research output: Contribution to journalArticlepeer-review

  43. Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer

    Guo, P., Alajarmeh, S., Alarja, G., Alrjoub, W., Al-Essa, A., Abusalem, L., Mansour, A., Sullivan, R., Shamieh, O. & Harding, R., May 2021, In: Palliative Medicine. 35, 5, p. 916-926 11 p.

    Research output: Contribution to journalArticlepeer-review

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