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Research Outputs

  1. 2013
  2. Mixed Methods Research in the Development and Evaluation of Complex Interventions in Palliative and End-of-Life Care: Report on the MORECare Consensus Exercise

    Farquhar, M., Preston, N., Evans, C. J., Grande, G., Short, V., Benalia, A., Higginson, I. J. & Todd, C., 10 Dec 2013, (E-pub ahead of print) In: Journal of Palliative Medicine. 16, 12, p. 1550-1560 11 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  3. Breathlessness - current and emerging mechanisms, measurement and management: A discussion from an European Association of Palliative Care workshop

    Currow, D. C., Higginson, I. J. & Johnson, M. J., Dec 2013, In: Palliative Medicine. 27, 10, p. 932-938 7 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  4. MORECare research methods guidance development: Recommendations for ethical issues in palliative and end-of-life care research

    Gysels, M., Evans, C. J., Lewis, P., Speck, P., Benalia, H., Preston, N. J., Grande, G. E., Short, V., Owen-Jones, E., Todd, C. J. & Higginson, I. J., Dec 2013, In: Palliative Medicine. 27, 10, p. 908-917 10 p.

    Research output: Contribution to journalArticlepeer-review

  5. Recommendations for managing missing data, attrition and response shift in palliative and end-of-life care research: Part of the MORECare research method guidance on statistical issues

    Preston, N. J., Fayers, P., Walters, S. J., Pilling, M., Grande, G. E., Short, V., Owen-Jones, E., Evans, C. J., Benalia, H., Higginson, I. J., Todd, C. J. & on behalf of MORECare, Dec 2013, In: Palliative Medicine. 27, 10, p. 899-907 8 p.

    Research output: Contribution to journalArticlepeer-review

  6. The Selection and Use of Outcome Measures in Palliative and End-of-Life Care Research: The MORECare International Consensus Workshop

    Evans, C. J., Benalia, A., Preston, N. J., Grande, G., Gysels, M., Short, V., Daveson, B. A., Bausewein, C., Todd, C., Higginson, I. J. & MORECare, Dec 2013, (E-pub ahead of print) In: Journal of Pain and Symptom Management. 46, 6, p. 925-937 13 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  7. A randomised, multicentre clinical trial of specialised palliative care plus standard treatment versus standard treatment alone for cancer patients with palliative care needs: the Danish palliative care trial ( DanPaCT) protocol

    Johnsen, A. T., Damkier, A., Vejlgaard, T. B., Lindschou, J., Sjogren, P., Gluud, C., Neergaard, M. A., Petersen, M. A., Lundorff, L. E., Pedersen, L., Fayers, P., Stromgren, A. S., Higginson, I. J. & Groenvold, M., 24 Oct 2013, In: BMC Palliative Care. 12, N/A, p. N/A 6 p., 37.

    Research output: Contribution to journalArticlepeer-review

  8. 'My dreams are shuttered down and it hurts lots'--a qualitative study of palliative care needs and their management by HIV outpatient services in Kenya and Uganda

    Selman, L., Simms, V., Penfold, S., Powell, R. A., Mwangi-Powell, F., Downing, J., Gikaara, N., Munene, G., Higginson, I. J. & Harding, R., 7 Oct 2013, (E-pub ahead of print) In: BMC Palliative Care. 12, N/A, p. N/A 13 p., 35.

    Research output: Contribution to journalArticlepeer-review

  9. Characterizing Episodic Breathlessness in Patients with Advanced Disease

    Weingärtner, V., Bausewein, C., Higginson, I. J., Scheve, C., Murtagh, F. E. M., Voltz, R. & Simon, S. T., 7 Oct 2013, In: Journal of Palliative Medicine. 16, 10, p. 1275-1279 5 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  10. If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis

    Harding, R., Simms, V., Calanzani, N., Higginson, I. J., Hall, S., Gysels, M., Meñaca, A., Bausewein, C., Deliens, L., Ferreira, P., Toscani, F., Daveson, B. A., Ceulemans, L., Gomes, B. & on behalf of PRISMA, Oct 2013, In: Psycho-Oncology. 22, 10, p. 2298-2305 8 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  11. Place of death, and its relation with underlying cause of death, in Parkinson's disease, motor neurone disease, and multiple sclerosis: A population-based study

    Sleeman, K. E., Ho, Y. K., Verne, J., Glickman, M., Silber, E., Gao, W., Higginson, I. J. & GUIDE Care Project, Oct 2013, In: Palliative Medicine. 27, 9, p. 840-846 7 p.

    Research output: Contribution to journalArticlepeer-review

  12. The palliative care needs for fibrotic interstitial lung disease: a qualitative study of patients, informal caregivers and health professionals

    Bajwah, S., Higginson, I., Ross, J., Wells, A. U., Birring, S., Riley, J. & Koffman, J., Oct 2013, In: Palliative Medicine. 27, 9, p. 869-876 8 p.

    Research output: Contribution to journalArticlepeer-review

  13. Interventions to improve symptoms and quality of life of patients with fibrotic interstitial lung disease: a systematic review of the literature

    Bajwah, S., Ross, J. R., Peacock, J. L., Higginson, I. J., Wells, A. U., Patel, A. S., Koffman, J. & Riley, J., Sep 2013, In: Thorax. 68, 9, p. 867-879 13 p.

    Research output: Contribution to journalArticlepeer-review

  14. The minimal important difference of the King's Brief Interstitial Lung Disease Questionnaire (K-BILD) and forced vital capacity in interstitial lung disease

    Patel, A., Siegert, R., Keir, G. J., Bajwah, S., Barker, R. D., Maher, T. M., Renzoni, E. A., Wells, A. U., Higginson, I. J. & Birring, S., Sep 2013, In: Respiratory Medicine. 107, 9, p. 1438-1443 6 p.

    Research output: Contribution to journalArticlepeer-review

  15. Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study

    Mason, B., Epiphaniou, E., Nanton, V., Donaldson, A., Shipman, C., Daveson, B. A., Harding, R., Higginson, I., Munday, D., Barclay, S., Boyd, K., Dale, J., Kendall, M., Worth, A. & Murray, S. A., Aug 2013, In: British Journal of General Practice. 63, 613, p. e580-e588 9 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  16. Diversity in Defining End of Life Care: An Obstacle or the Way Forward?

    Gysels, M., Evans, N., Menaca, A., Higginson, I. J., Harding, R., Pool, R. & Project PRISMA, 3 Jul 2013, In: PL o S One . 8, 7, p. N/A 7 p., e68002.

    Research output: Contribution to journalArticlepeer-review

  17. Living with breathlessness: A survey of caregivers of breathless patients with lung cancer or heart failure

    Malik, F. A., Gysels, M. & Higginson, I. J., Jul 2013, In: Palliative Medicine. 27, 7, p. 647-56 10 p.

    Research output: Contribution to journalArticlepeer-review

  18. 'Peace' and 'life worthwhile' as measures of spiritual well-being in African palliative care: a mixed-methods study

    Selman, L., Speck, P., Gysels, M., Agupio, G., Dinat, N., Downing, J., Gwyther, L., Mashao, T., Mmoledi, K., Moll, T., Sebuyira, L. M., Ikin, B., Higginson, I. J. & Harding, R., 10 Jun 2013, (E-pub ahead of print) In: Health and Quality of Life Outcomes. 11, 1, 94.

    Research output: Contribution to journalArticlepeer-review

  19. Episodes of breathlessness: Types and patterns - a qualitative study exploring experiences of patients with advanced diseases

    Simon, S. T., Higginson, I. J., Benalia, H., Gysels, M., Murtagh, F. E. M., Spicer, J. & Bausewein, C., Jun 2013, In: Palliative Medicine. 27, 6, p. 524-532 9 p.

    Research output: Contribution to journalArticlepeer-review

  20. Episodic and Continuous Breathlessness: A New Categorization of Breathlessness

    Simon, S. T., Higginson, I. J., Benalia, H., Gysels, M., Murtagh, F. E. M., Spicer, J. & Bausewein, C., Jun 2013, In: Journal of Pain and Symptom Management. 45, 6, p. 1019-1029 11 p.

    Research output: Contribution to journalArticlepeer-review

  21. Meanings of happiness among two ethnic groups living with advanced cancer in south London: a qualitative study

    Koffman, J., Morgan, M., Edmonds, P., Speck, P., Siegerist, R. & Higginson, I., May 2013, In: Psycho-Oncology. 22, 5, p. 1096-1103 8 p.

    Research output: Contribution to journalArticlepeer-review

  22. To be involved or not to be involved: A survey of public preferences for self-involvement in decision-making involving mental capacity (competency) within Europe

    Daveson, B. A., Bausewein, C., Murtagh, F. E., Calanzani, N., Higginson, I. J., Harding, R., Cohen, J., Simon, S. T., Deliens, L., Bechinger-English, D., Hall, S., Koffman, J., Ferreira, P. L., Toscani, F., Gysels, M., Ceulemans, L., Haugen, D. F., Gomes, B. & on behalf of PRISMA, May 2013, In: Palliative Medicine. 27, 5, p. 418-427 10 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  23. How to Analyze Palliative Care Outcome Data for Patients in Sub-Saharan Africa: An International, Multicenter, Factor Analytic Examination of the APCA African POS

    Harding, R., Selman, L., Simms, V. M., Penfold, S., Agupio, G., Dinat, N., Downing, J., Gwyther, L., Ikin, B., Mashao, T., Mmoledi, K., Sebuyira, L. M., Moll, T., Mwangi-Powell, F., Namisango, E., Powell, R. A., Walkey, F. H., Higginson, I. J. & Siegert, R. J., Apr 2013, In: Journal of Pain and Symptom Management. 45, 4, p. 746-752 7 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  24. Research into palliative care in sub-Saharan Africa

    Harding, R., Selman, L., Powell, R. A., Namisango, E., Downing, J., Merriman, A., Ali, Z., Gikaara, N., Gwyther, L. & Higginson, I., Apr 2013, In: The Lancet Oncology. 14, 4, p. e183-e188 6 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  25. Health metrics: Standardize records of place of death

    Gomes, B., Pivodic, L., Higginson, I. J. & Sarmento, V. P., 28 Mar 2013, In: NATURE. 495, 7442, p. 449 1 p.

    Research output: Contribution to journalLetterpeer-review

  26. 'Burden to others' as a public concern in advanced cancer: a comparative survey in seven European countries

    Bausewein, C., Calanzani, N., Daveson, B. A., Simon, S. T., Ferreira, P. L., Higginson, I. J., Bechinger-English, D., Deliens, L., Gysels, M., Toscani, F., Ceulemans, L., Harding, R. & Gomes, B., 8 Mar 2013, (E-pub ahead of print) In: BMC Cancer. 13, 1, p. N/A 11 p., 105.

    Research output: Contribution to journalArticlepeer-review

  27. Changing patterns in place of cancer death in England: a population-based study

    Gao, W., Ho, Y. K., Verne, J., Glickman, M., Higginson, I. J. & GUIDE Care Project, Mar 2013, In: PL o S Medicine. 10, 3, e1001410.

    Research output: Contribution to journalArticlepeer-review

  28. Episodic Breathlessness in Patients With Advanced Disease: A Systematic Review

    Simon, S. T., Bausewein, C., Schildmann, E. K., Higginson, I., Magnussen, H., Scheve, C. & Ramsenthaler, C., Mar 2013, In: Journal of Pain and Symptom Management. 45, 3, p. 561-578 18 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  29. Multidimensional patient-reported problems within two weeks of HIV diagnosis in East Africa: a multicentre observational study

    Simms, V., Gikaara, N., Munene, G., Atieno, M., Kataike, J., Nsubuga, C., Banga, G., Namisango, E., Penfold, S., Fayers, P., Powell, R. A., Higginson, I. J. & Harding, R., 19 Feb 2013, In: PLoS ONE. 8, 2, p. N/A 5 p., e57203.

    Research output: Contribution to journalArticlepeer-review

  30. Heterogeneity and changes in preferences for dying at home: a systematic review

    Gomes, B., Calanzani, N., Gysels, M., Hall, S. & Higginson, I. J., 15 Feb 2013, (E-pub ahead of print) In: BMC Palliative Care. 12, 7, p. N/A 13 p., 7.

    Research output: Contribution to journalArticlepeer-review

  31. Social-cultural factors in end-of-life care in Belgium: a scoping of the research literature

    Andrew, E. V. W., Cohen, J., Evans, N., Meñaca, A., Harding, R., Higginson, I., Pool, R., Gysels, M. & PRISMA, Feb 2013, In: Palliative Medicine. 27, 2, p. 131-143 13 p., N/A.

    Research output: Contribution to journalArticlepeer-review

  32. Neuromuscular electrical stimulation for muscle weakness in adults with advanced disease

    Maddocks, M., Gao, W., Higginson, I. J. & Wilcock, A., 31 Jan 2013, In: Cochrane Database of Systematic Reviews. 2013, 1, CD009419.

    Research output: Contribution to journalLiterature reviewpeer-review

  33. The development and validation of the King's Sarcoidosis Questionnaire for the assessment of health status

    Patel, A., Siegert, R. J., Creamer, D., Larkin, G., Maher, T. M., Renzoni, E. A., Wells, A. U., Higginson, I. J. & Birring, S., 1 Jan 2013, In: Thorax. 68, 1, p. 57-65 9 p.

    Research output: Contribution to journalArticlepeer-review

  34. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers

    Gomes, B., Calanzani, N., Curiale, V., McCrone, P. & Higginson, I. J., 2013, In: Cochrane Database of Systematic Reviews. N/A, 6, p. N/A 281 p., CD007760.

    Research output: Contribution to journalLiterature reviewpeer-review

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