Bhardwaj, T, Chambers, RL, Watson, H, Srividya, , Higginson, IJ & Hocaoglu, MB 2023, 'Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients', Palliative Medicine. https://doi.org/10.1177/02692163221147076

Garner, IW, Walshe, C, Dunleavey, L, Bradshaw, A, Preston, N, Fraser, LK, Murtagh, FE, Oluyase, AO, Sleeman, KE, Hocaoglu, M, Bajwah, S, Chambers, RL, Maddocks, M & Higginson, IJ 2022, 'Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall)', BMC Palliative Care, vol. 21, no. 1, 176. https://doi.org/10.1186/s12904-022-01070-8

Leniz Martelli, L, Gulliford, M, Higginson, I, Bajwah, S, Yi, D, Gao, W & Sleeman, K 2022, 'Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia', BJGP Open, vol. 72, no. 722, pp. E684-E692. https://doi.org/10.3399/BJGP.2021.0715

Yi, DH, Reilly, C, Gao, W & Higginson, I 2022, 'Optimising breathlessness triggered services for older people with advanced diseases: a multicentre economic study (OPTBreathe)', Thorax, vol. 0, 218251, pp. 1-7. https://doi.org/10.1136/thoraxjnl-2021-218251

Leniz, J, Evans, CJ, Yi, D, Bone, AE, Higginson, IJ & Sleeman, KE 2022, 'Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis', Journal Of The American Medical Directors Association, vol. 23, no. 12, pp. 2015-2022.e5. https://doi.org/10.1016/j.jamda.2022.06.007

Scott, HM, Coombes, L, Braybrook, D, Roach, A, Harðardóttir, D, Bristowe, K, Ellis-Smith, C, Higginson, I, Gao, W, Bluebond-Langner, M, Farsides, B, Murtagh, FEM, Fraser, LK & Harding, R 2022, 'COVID-19: Impact on Pediatric Palliative Care', Journal of pain and symptom management, vol. 64, no. 1, pp. e1-e5. https://doi.org/10.1016/j.jpainsymman.2022.02.330

Namisango, E, Bristowe, K, Murtagh, FEM, Downing, J, Powell, RA, Atieno, M, Abas, M, Ali, Z, Luyirika, EBK, Meiring, M, Mwangi-Powell, FN, Higginson, IJ & Harding, R 2022, 'Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries', Palliative medicine, vol. 36, no. 7, pp. 1140-1153. https://doi.org/10.1177/02692163221099583

Curtis, JR, Higginson, IJ & White, DB 2022, 'Integrating palliative care into the ICU: a lasting and developing legacy', Intensive Care Medicine, vol. 48, no. 7, pp. 939-942. https://doi.org/10.1007/s00134-022-06729-7

Bradshaw, A, Dunleavy, L, Garner, I, Preston, N, Bajwah, S, Cripps, R, Fraser, LK, Maddocks, M, Hocaoglu, M, Murtagh, FEM, Oluyase, AO, Sleeman, KE, Higginson, IJ & Walshe, C 2022, 'Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study', Journal of the Royal Society of Medicine, vol. 115, no. 6, pp. 220-230. https://doi.org/10.1177/01410768221077366

Sandham, MH, Hedgecock, EA, Siegert, RJ, Narayanan, A, Hocaoglu, MB & Higginson, IJ 2022, 'Intelligent Palliative Care Based on Patient-Reported Outcome Measures', Journal of pain and symptom management, vol. 63, no. 5, pp. 747-757. https://doi.org/10.1016/j.jpainsymman.2021.11.008

Sleeman, KE, Cripps, RL, Murtagh, FEM, Oluyase, AO, Hocaoglu, MB, Maddocks, M, Walshe, C, Preston, N, Dunleavy, L, Bradshaw, A, Bajwah, S, Higginson, IJ & Fraser, LK 2022, 'Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)', Journal of palliative medicine, vol. 25, no. 3, pp. 465-471. https://doi.org/10.1089/jpm.2021.0315

Leniz, J, Henson, LA, Potter, J, Gao, W, Newsom-Davis, T, Ul-Haq, Z, Lucas, A, Higginson, IJ & Sleeman, KE 2022, 'Association of primary and community care services with emergency visits and hospital admissions at the end of life in people with cancer: a retrospective cohort study', BMJ Open, vol. 12, no. 2, e054281, pp. e054281. https://doi.org/10.1136/bmjopen-2021-054281

Reilly, CC, Bristowe, K, Roach, A, Maddocks, M & Higginson, IJ 2022, '“You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic', ERJ Open Research, vol. 8, no. 1, 00557-2021. https://doi.org/10.1183/23120541.00557-2021

Beattie, JM, Higginson, IJ, McDonagh, TA & Gao, W 2022, 'Implementation of the Mental Capacity Act: a national observational study comparing resultant trends in place of death for older heart failure decedents with or without comorbid dementia', BMC Medicine, vol. 20, no. 1, 30. https://doi.org/10.1186/s12916-021-02210-2

Krajnik, M, Hepgul, N, Wilcock, A, Jassem, E, Bandurski, T, Tanzi, S, Simon, ST, Higginson, I & Jolley, C 2022, 'Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians', BMC pulmonary medicine, vol. 22, no. 1, 41. https://doi.org/10.1186/s12890-022-01835-0

CovPall study team 2022, 'Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom)', Journal of pain and symptom management. https://doi.org/10.1016/j.jpainsymman.2022.06.009

Oluyase, A, Bajwah, S, Sleeman, K, Walshe, C, Preston, N, Hocaoglu, M, Bradshaw, A, Chambers, R, Murtagh, F, Dunleavy, L, Maddocks, M, Fraser, L & Higginson, I 2022, 'Symptom management in people dying with COVID-19: multinational observational study (CovPall)', BMJ Supportive & Palliative Care.

Bayly, J, Bradshaw, A, Fettes, L, Omarjee, M, Talbot-Rice, H, Walshe, C, Sleeman, KE, Bajwah, S, Dunleavy, L, Hocaoglu, M, Oluyase, A, Garner, I, Cripps, RL, Preston, N, Fraser, LK, Murtagh, FEM, Higginson, IJ & Maddocks, M 2021, 'Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data', Palliative medicine, vol. 36, no. 2. https://doi.org/10.1177/02692163211063397

SPACE 2021, 'Characteristics and mortality rates among patients requiring intermediate care: a national cohort study using linked databases', BMC Medicine, vol. 19, no. 1, 48, pp. 48. https://doi.org/10.1186/s12916-021-01912-x

Bayly, J, Bone, AE, Ellis-Smith, C, Tunnard, I, Yaqub, S, Yi, D, Nkhoma, KB, Cook, A, Combes, S, Bajwah, S, Harding, R, Nicholson, C, Normand, C, Ahuja, S, Turrillas, P, Kizawa, Y, Morita, T, Nishiyama, N, Tsuneto, S, Ong, P, Higginson, IJ, Evans, CJ & Maddocks, M 2021, 'Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review', BMJ Open, vol. 11, no. 12, e048417. https://doi.org/10.1136/bmjopen-2020-048417

Ellis-Smith, C, Tunnard, I, Dawkins, M, Gao, W, Higginson, I & Evans, C 2021, 'Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools', BMC Palliative Care, vol. 20, no. 1, 10.1186/s12904-021-00845-9, pp. 168. https://doi.org/10.1186/s12904-021-00845-9

Tunnard, I, Yi, D, Ellis-Smith, C, Dawkins, M, Higginson, IJ & Evans, CJ 2021, 'Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations', BMC Geriatrics , vol. 21, no. 1, 553. https://doi.org/10.1186/s12877-021-02480-8

Leniz Martelli, J, Higginson, I, Yi, DH, Ul-Haq, Z, Lucas, A & Sleeman, K 2021, 'Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data', Palliative Medicine, vol. 35, no. 9, pp. 1691-1700. https://doi.org/10.1177/02692163211019897

CovPall study team, Bajwah, S, Koffman, J, Hussain, J, Bradshaw, A, Hocaoglu, MB, Fraser, LK, Oluyase, A, Allwin, C, Dunleavy, L, Preston, N, Cripps, R, Maddocks, M, Sleeman, KE, Higginson, IJ, Walshe, C & Murtagh, FEM 2021, 'Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable-an observational study', BMJ Supportive & Palliative Care. https://doi.org/10.1136/bmjspcare-2021-003083

Oluyase, A, Hocaoglu, M, Cripps, R, Maddocks, M, Walshe, C, Fraser, LK, Preston, N, Dunleavy, L, Bradshaw, A, Murtagh, FEM, Bajwah, S, Sleeman, K & Higginson, I 2021, 'The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)', Journal of Pain and Symptom Management, vol. 62, no. 3, pp. 460-470. https://doi.org/10.1016/j.jpainsymman.2021.01.138

Evans, C, Bone, A, Yi, DH, Gao, W, Morgan, M, Taherzadeh, S, Maddocks, M, Wright, J, Lindsay, F, Bruni, C, Harding, R, Sleeman, K, Gomes, B & Higginson, I 2021, 'Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care: a randomised controlled single-blind mixed method trial', International Journal of Nursing Studies, vol. 120, 103978. https://doi.org/10.1016/j.ijnurstu.2021.103978

Lin, CP, Boufkhed, S, Kizawa, Y, Mori, M, Hamzah, E, Aggarwal, G, Namisango, E, Higginson, IJ, Goh, C & Harding, R 2021, 'Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey', American Journal of Hospice and Palliative Medicine, vol. 38, no. 7, pp. 861-868. https://doi.org/10.1177/10499091211002797

On behalf of the CovPall study team 2021, 'Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services', Palliative Medicine, vol. 35, no. 7, pp. 1225-1237. https://doi.org/10.1177/02692163211017387

Higginson, IJ, Brooks, D & Barclay, S 2021, 'Dying at home during the pandemic', The BMJ, vol. 373, n1437. https://doi.org/10.1136/bmj.n1437

Wilson, R, Gaughran, F, Whitburn, T, Higginson, IJ & Gao, W 2021, 'Acute care utilisation towards the end of life and the place of death for patients with serious mental disorders: a register-based cohort study in South London', Public Health, vol. 194, pp. 79-85. https://doi.org/10.1016/j.puhe.2021.02.032

Dunleavy, L, Preston, N, Bajwah, S, Bradshaw, A, Cripps, R, Fraser, LK, Maddocks, M, Hocaoglu, M, Murtagh, FEM, Oluyase, AO, Sleeman, KE, Higginson, IJ & Walshe, C 2021, '‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)', Palliative Medicine, vol. 35, no. 5, pp. 814-829. https://doi.org/10.1177/02692163211000660

Lin, C-P, Boufkhed, S, Pai, A, Namisango, E, Luyirika, EBK, Sleeman, K, Costantini, M, Peruselli, C, Higginson, I, Ekstrand, M, Harding, R, Salins, N & Bhatnagar, S 2021, 'Preparedness and capacity of Indian palliative care services to respond to the COVID-19 pandemic: an online rapid assessment survey', Indian journal of palliative care, vol. 27, no. 1, pp. 152-171. https://doi.org/10.4103/ijpc.ijpc_429_20

Finucane, A, Bone, A, Etkind, S, Carr, D, Meade, R, Munoz-Arroyo, R, Moine, S, Iyayi-Igbinovia, A, Evans, C, Higginson, I & Murray, S 2021, 'How many people will need palliative care in Scotland by 2040? A mixed method study of projected palliative care need and recommendations for service delivery', BMJ Open, vol. 11, no. 2, e041317. https://doi.org/doi:10.1136/bmjopen-2020-041317

Antunes, B, Rodrigues, PPEREIRA, Higginson, IJ & Ferreira, L 2021, 'Avaliação de Processo de um Estudo de Viabilidade de Metodologia Mista para Identificar Doentes Hospitalares com Necessidades de Cuidados Paliativos em Portugal', Acta Medica Portuguesa, vol. 34, no. 13. https://doi.org/10.20344/AMP.15294

Leniz, J, Yi, D, Yorganci, E, Williamson, LE, Suji, T, Cripps, R, Higginson, IJ & Sleeman, KE 2021, 'Exploring costs, cost components, and associated factors among people with dementia approaching the end of life: A systematic review', Alzheimer's and Dementia: Translational Research and Clinical Interventions, vol. 7, no. 1, e12198. https://doi.org/10.1002/trc2.12198

Fettes, L, Bayly, J, de Bruin, LM, Patel, M, Ashford, S, Higginson, IJ & Maddocks, M 2021, 'Relationships between prolonged physical and social isolation during the COVID-19 pandemic, reduced physical activity and disability in activities of daily living among people with advanced respiratory disease', Chronic Respiratory Disease, vol. 18. https://doi.org/10.1177/14799731211035822

Higginson, IJ, Yi, D, Johnston, BM, Ryan, K, McQuillan, R, Selman, L, Pantilat, SZ, Daveson, B, Morrison, RS & Normand, C 2020, 'Associations between informal care costs, care quality, carer rewards, burden and subsequent grief: the international, access, rights and empowerment mortality follow-back study of the last 3 months of life (IARE I study)', BMC Medicine, vol. 18, no. 1, 344. https://doi.org/10.1186/s12916-020-01768-7

Beattie, JM, Higginson, IJ & McDonagh, TA 2020, 'Palliative Care in Acute Heart Failure', Current Heart Failure Reports, vol. 17, no. 6, pp. 424-437. https://doi.org/10.1007/s11897-020-00494-8

Boufkhed, S, Namisango, E, Luyirika, E, Sleeman, KE, Costantini, M, Peruselli, C, Normand, C, Higginson, IJ & Harding, R 2020, 'Preparedness of African palliative care services to respond to the COVID-19 pandemic: A rapid assessment', Journal of Pain and Symptom Management, vol. 60, no. 6, pp. e10-e26. https://doi.org/10.1016/j.jpainsymman.2020.09.018

Bajwah, S, Oluyase, AO, Yi, D, Gao, W, Evans, CJ, Grande, G, Todd, C, Costantini, M, Murtagh, FE & Higginson, IJ 2020, 'The effectiveness and cost-effectiveness of hospital-based specialist palliative care for adults with advanced illness and their caregivers', The Cochrane database of systematic reviews, vol. 2020, no. 9, CD012780. https://doi.org/10.1002/14651858.CD012780.pub2

Etkind, SN, Lovell, N, Bone, AE, Guo, P, Nicholson, C, Murtagh, FEM & Higginson, IJ 2020, 'The stability of care preferences following acute illness: A mixed methods prospective cohort study of frail older people', BMC Geriatrics , vol. 20, no. 1, 370. https://doi.org/10.1186/s12877-020-01725-2

Hocaoglu, MB, Hepgul, N, Tunnard, I, Meltem, E, Efe, H, Ataoglu, B, Baybar, YL, Kınacıgil, M, Elsharairi, H & Higginson, IJ 2020, 'Towards patient-centred cancer care: cross-cultural validity and responsiveness of the Turkish Integrated Palliative care Outcome Scale', Health and Quality of Life Outcomes, vol. 18, no. 1, 312. https://doi.org/10.1186/s12955-020-01535-5

OPTCARE Neuro Trial Investigators, Gao, W, Wilson, R, Hepgul, N, Yi, D, Evans, C, Bajwah, S, Crosby, V, Wilcock, A, Lindsay, F, Byrne, A, Young, C, Groves, K, Smith, C, Burman, R, Chaudhuri, KR, Silber, E & Higginson, IJ 2020, 'Effect of Short-term Integrated Palliative Care on Patient-Reported Outcomes Among Patients Severely Affected With Long-term Neurological Conditions: A Randomized Clinical Trial', JAMA Network open, vol. 3, no. 8, pp. e2015061. https://doi.org/10.1001/jamanetworkopen.2020.15061

Ting, R, Edmonds, P, Higginson, IJ & Sleeman, KE 2020, 'Palliative care for patients with severe covid-19', The BMJ, vol. 370, m2710. https://doi.org/10.1136/bmj.m2710

Costantini, M, Sleeman, KE, Peruselli, C & Higginson, IJ 2020, 'Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy', Palliative medicine, vol. 34, no. 7, pp. 889-895. https://doi.org/10.1177/0269216320920780

Lovell, N, Maddocks, M, Etkind, SN, Taylor, K, Carey, I, Vora, V, Marsh, L, Higginson, IJ, Prentice, W, Edmonds, P & Sleeman, KE 2020, 'Characteristics, Symptom Management, and Outcomes of 101 Patients With COVID-19 Referred for Hospital Palliative Care', Journal of pain and symptom management, vol. 60, no. 1, pp. e77-e81. https://doi.org/10.1016/j.jpainsymman.2020.04.015

MORECare_Capacity, Evans, CJ, Yorganci, E, Lewis, P, Koffman, J, Stone, K, Tunnard, I, Wee, B, Bernal, W, Hotopf, M & Higginson, IJ 2020, 'Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement)', BMC Medicine, vol. 18, no. 1, 221. https://doi.org/10.1186/s12916-020-01654-2

Antunes, B, Rodrigues, PP, Higginson, IJ & Ferreira, PL 2020, 'Determining the prevalence of palliative needs and exploring screening accuracy of depression and anxiety items of the integrated palliative care outcome scale - A multi-centre study', BMC Palliative Care, vol. 19, no. 1, 69. https://doi.org/10.1186/s12904-020-00571-8

Bajwah, S, Wilcock, A, Towers, R, Costantini, M, Bausewein, C, Simon, ST, Bendstrup, E, Prentice, W, Johnson, MJ, Currow, DC, Kreuter, M, Wells, AU, Birring, SS, Edmonds, P & Higginson, IJ 2020, 'Managing the supportive care needs of those affected by COVID-19', The European respiratory journal, vol. 55, no. 4, e2000815. https://doi.org/10.1183/13993003.00815-2020

Yi, D, Johnston, BM, Ryan, K, Daveson, BA, Meier, DE, Smith, M, McQuillan, R, Selman, L, Pantilat, SZ, Normand, C, Morrison, RS & Higginson, IJ 2020, 'Drivers of care costs and quality in the last 3 months of life among older people receiving palliative care: A multinational mortality follow-back survey across England, Ireland and the United States', Palliative Medicine, vol. 34, no. 4, pp. 513-523. https://doi.org/10.1177/0269216319896745