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Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program

Research output: Contribution to journalArticle

Original languageEnglish
Pages (from-to)159-164
JournalEpilepsy & Behavior
Volume52
Issue numberPart A
Early online date29 Sep 2015
DOIs
Accepted/In press17 Aug 2015
E-pub ahead of print29 Sep 2015
Published29 Sep 2015

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Abstract

Background:
Epilepsy is a long-term condition that requires self-management, but currently, there is no well evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK).

Aim:
The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial.
Method: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were
audio-recorded, transcribed, and analyzed thematically.

Results:
All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better
equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis.

Conclusion:
A brief group self-management intervention increased knowledge and confidence in managing epilepsy.

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