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Service user led organisations in mental health today

Research output: Contribution to journalArticlepeer-review

Diana Rose, Dee MacDonald, Aaron Wilson, Mike Crawford, Marian Barnes, Edward Omeni

Original languageEnglish
Pages (from-to)1-6
Number of pages6
JournalJournal of Mental Health
Early online date12 Feb 2016
Accepted/In press7 Dec 2015
E-pub ahead of print12 Feb 2016


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    ULOarticlerevisedmb_1_.docx, 50.5 KB, application/vnd.openxmlformats-officedocument.wordprocessingml.document

    Uploaded date:01 Mar 2016

    Version:Accepted author manuscript

King's Authors


BACKGROUND: Since 1990, health policy in England has stressed the importance of user involvement in shaping and delivering services.

AIMS: To explore mental health service user-led organisations (ULOs) in England, as they interact with decision-makers to bring about change desired by them with a focus on institutional norms behaviour and specialised knowledge impacting service users' relationships with services.

METHOD: An ethnography of five ULOs in two provider organisations (NHS Trusts) including observing their meetings and interactions with decision-makers, conducting in-depth interviews and collecting reflective diaries kept by two members of each group.

RESULTS: During the study, one group ceased to operate. This was a group which refused to adopt the institutional rules and norms of managerial discourse. The other four groups survived by navigating the changing environment which existed at the time of the study, although often at some cost. Themes of autonomy and leadership were also identified.

CONCLUSION: The current environment is one of the organisational complexity and change and the place of ULOs is an ambiguous one as they strive to maintain autonomy whilst at the same time being an acceptable voice to managers.

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