Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

Kelly K. O’Brien; Francisco Ibáñez-Carrasco; Patricia Solomon; Soo Chan Carusone; Ann Stewart; Ahmed M. Bayoumi; Darren A. Brown; Adria Quigley; Puja Ahluwalia; Kristine M. Erlandson; Jaime H. Vera; Colm Bergin; Steven E. Hanna; Marilyn Swinton; Brittany Torres; Kiera McDuff; George Da Silva; Glen Bradford; Shaz Islam; Colleen Price; Joanne D. Lindsay; Carolann Murray; Natalia McClellan; Katrina Krizmancic; Praney Anand; Tammy Yates; Rosalind Baltzer Turje; Patrick McDougall; Vladislava Vlatka Maksimcev; Richard Harding

doi:10.1177/23259582231210801

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

Kelly K. O’Brien^*, Francisco Ibáñez-Carrasco, Patricia Solomon, Soo Chan Carusone, Ann Stewart, Ahmed M. Bayoumi, Darren A. Brown, Adria Quigley, Puja Ahluwalia, Kristine M. Erlandson, Jaime H. Vera, Colm Bergin, Steven E. Hanna, Marilyn Swinton, Brittany Torres, Kiera McDuff, George Da Silva, Glen Bradford, Shaz Islam, Colleen PriceJoanne D. Lindsay, Carolann Murray, Natalia McClellan, Katrina Krizmancic, Praney Anand, Tammy Yates, Rosalind Baltzer Turje, Patrick McDougall, Vladislava Vlatka Maksimcev, Richard Harding

^*Corresponding author for this work

Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation

Research output: Contribution to journal › Article › peer-review

Abstract

Purpose: We assessed the sensibility, utility, and implementation considerations of the Short-Form HIV Disability Questionnaire (SF-HDQ) in community-based settings. Methods: We conducted a mixed-methods study with adults living with HIV and community providers in seven community sites in Canada. We administered the SF-HDQ, a sensibility questionnaire and conducted semi-structured interviews. The SF-HDQ was sensible if median scores were ≥5/7(adults living with HIV) and ≥4/7(community providers) for ≥80% of the sensibility questionnaire items. Qualitative interview data were analyzed using content analysis. Results: Median sensibility scores were ≥5 for adults living with HIV (n = 44) and ≥4 for community providers (n = 10) for 95% and 100% of items, respectively. The SF-HDQ is comprehensive, represented disability, captured its episodic nature, and was easy to complete. Community utility included: facilitating communication and engagement with community; taking a snapshot of disability and tracking changes over time; guiding referrals; fostering self-reflection; and informing community programs. Considerations for implementation included flexible, person-centered approaches to mode and processes of administration, and communicating scores based on personal preferences among persons living with HIV. Conclusion: The SF-HDQ possesses sensibility and utility for use in community-based settings.

Original language	English
Journal	Journal of the International Association of Providers of AIDS Care
Volume	22
DOIs	https://doi.org/10.1177/23259582231210801
Publication status	Published - 1 Jan 2023

Keywords

community-based research
disability
HIV
measurement

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1177/23259582231210801

Cite this

O’Brien, K. K., Ibáñez-Carrasco, F., Solomon, P., Chan Carusone, S., Stewart, A., Bayoumi, A. M., Brown, D. A., Quigley, A., Ahluwalia, P., Erlandson, K. M., Vera, J. H., Bergin, C., Hanna, S. E., Swinton, M., Torres, B., McDuff, K., Da Silva, G., Bradford, G., Islam, S., ... Harding, R. (2023). Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study. Journal of the International Association of Providers of AIDS Care, 22. https://doi.org/10.1177/23259582231210801

@article{426dd21abbc44845a79c0748b93f4c7a,

title = "Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study",

abstract = "Purpose: We assessed the sensibility, utility, and implementation considerations of the Short-Form HIV Disability Questionnaire (SF-HDQ) in community-based settings. Methods: We conducted a mixed-methods study with adults living with HIV and community providers in seven community sites in Canada. We administered the SF-HDQ, a sensibility questionnaire and conducted semi-structured interviews. The SF-HDQ was sensible if median scores were ≥5/7(adults living with HIV) and ≥4/7(community providers) for ≥80% of the sensibility questionnaire items. Qualitative interview data were analyzed using content analysis. Results: Median sensibility scores were ≥5 for adults living with HIV (n = 44) and ≥4 for community providers (n = 10) for 95% and 100% of items, respectively. The SF-HDQ is comprehensive, represented disability, captured its episodic nature, and was easy to complete. Community utility included: facilitating communication and engagement with community; taking a snapshot of disability and tracking changes over time; guiding referrals; fostering self-reflection; and informing community programs. Considerations for implementation included flexible, person-centered approaches to mode and processes of administration, and communicating scores based on personal preferences among persons living with HIV. Conclusion: The SF-HDQ possesses sensibility and utility for use in community-based settings.",

keywords = "community-based research, disability, HIV, measurement",

author = "O{\textquoteright}Brien, {Kelly K.} and Francisco Ib{\'a}{\~n}ez-Carrasco and Patricia Solomon and {Chan Carusone}, Soo and Ann Stewart and Bayoumi, {Ahmed M.} and Brown, {Darren A.} and Adria Quigley and Puja Ahluwalia and Erlandson, {Kristine M.} and Vera, {Jaime H.} and Colm Bergin and Hanna, {Steven E.} and Marilyn Swinton and Brittany Torres and Kiera McDuff and {Da Silva}, George and Glen Bradford and Shaz Islam and Colleen Price and Lindsay, {Joanne D.} and Carolann Murray and Natalia McClellan and Katrina Krizmancic and Praney Anand and Tammy Yates and {Baltzer Turje}, Rosalind and Patrick McDougall and Maksimcev, {Vladislava Vlatka} and Richard Harding",

note = "Funding Information: The authors acknowledge those who volunteered their time to participate in this research as well as staff and volunteers in the community-based organization settings who supported the implementation of this research. We thank the following community-based organization and community health center settings for their collaborations and support in this research including the Alliance for South Asian AIDS Prevention (ASAAP), AIDS Committee of Toronto (ACT), Toronto People with AIDS Foundation (PWA), St. Michael's Hospital Academic Family Health Team, Wellesley-St. Jamestown site, Dr Peter Centre/Dr Peter AIDS Foundation, AIDS Vancouver, and AIDS Community Care Montreal (ACCM). Kelly K. O{\textquoteright}Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. Funding Information: The authors acknowledge those who volunteered their time to participate in this research as well as staff and volunteers in the community-based organization settings who supported the implementation of this research. We thank the following community-based organization and community health center settings for their collaborations and support in this research including the Alliance for South Asian AIDS Prevention (ASAAP), AIDS Committee of Toronto (ACT), Toronto People with AIDS Foundation (PWA), St. Michael's Hospital Academic Family Health Team, Wellesley-St. Jamestown site, Dr Peter Centre/Dr Peter AIDS Foundation, AIDS Vancouver, and AIDS Community Care Montreal (ACCM). Kelly K. O{\textquoteright}Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the Canadian Institutes of Health Research (Funding Reference Number: CBR-170102). Kelly K. O{\textquoteright}Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the Canadian Institutes of Health Research (Funding Reference Number: CBR-170102). Kelly K. O{\textquoteright}Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. Publisher Copyright: {\textcopyright} The Author(s) 2023.",

year = "2023",

month = jan,

day = "1",

doi = "10.1177/23259582231210801",

language = "English",

volume = "22",

journal = "Journal of the International Association of Providers of AIDS Care",

issn = "2325-9574",

publisher = "SAGE Publications Inc.",

}

O’Brien, KK, Ibáñez-Carrasco, F, Solomon, P, Chan Carusone, S, Stewart, A, Bayoumi, AM, Brown, DA, Quigley, A, Ahluwalia, P, Erlandson, KM, Vera, JH, Bergin, C, Hanna, SE, Swinton, M, Torres, B, McDuff, K, Da Silva, G, Bradford, G, Islam, S, Price, C, Lindsay, JD, Murray, C, McClellan, N, Krizmancic, K, Anand, P, Yates, T, Baltzer Turje, R, McDougall, P, Maksimcev, VV & Harding, R 2023, 'Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study', Journal of the International Association of Providers of AIDS Care, vol. 22. https://doi.org/10.1177/23259582231210801

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study. / O’Brien, Kelly K.; Ibáñez-Carrasco, Francisco; Solomon, Patricia et al.
In: Journal of the International Association of Providers of AIDS Care, Vol. 22, 01.01.2023.

Research output: Contribution to journal › Article › peer-review

TY - JOUR

T1 - Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings

T2 - A Mixed Methods Study

AU - O’Brien, Kelly K.

AU - Ibáñez-Carrasco, Francisco

AU - Solomon, Patricia

AU - Chan Carusone, Soo

AU - Stewart, Ann

AU - Bayoumi, Ahmed M.

AU - Brown, Darren A.

AU - Quigley, Adria

AU - Ahluwalia, Puja

AU - Erlandson, Kristine M.

AU - Vera, Jaime H.

AU - Bergin, Colm

AU - Hanna, Steven E.

AU - Swinton, Marilyn

AU - Torres, Brittany

AU - McDuff, Kiera

AU - Da Silva, George

AU - Bradford, Glen

AU - Islam, Shaz

AU - Price, Colleen

AU - Lindsay, Joanne D.

AU - Murray, Carolann

AU - McClellan, Natalia

AU - Krizmancic, Katrina

AU - Anand, Praney

AU - Yates, Tammy

AU - Baltzer Turje, Rosalind

AU - McDougall, Patrick

AU - Maksimcev, Vladislava Vlatka

AU - Harding, Richard

N1 - Funding Information: The authors acknowledge those who volunteered their time to participate in this research as well as staff and volunteers in the community-based organization settings who supported the implementation of this research. We thank the following community-based organization and community health center settings for their collaborations and support in this research including the Alliance for South Asian AIDS Prevention (ASAAP), AIDS Committee of Toronto (ACT), Toronto People with AIDS Foundation (PWA), St. Michael's Hospital Academic Family Health Team, Wellesley-St. Jamestown site, Dr Peter Centre/Dr Peter AIDS Foundation, AIDS Vancouver, and AIDS Community Care Montreal (ACCM). Kelly K. O’Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. Funding Information: The authors acknowledge those who volunteered their time to participate in this research as well as staff and volunteers in the community-based organization settings who supported the implementation of this research. We thank the following community-based organization and community health center settings for their collaborations and support in this research including the Alliance for South Asian AIDS Prevention (ASAAP), AIDS Committee of Toronto (ACT), Toronto People with AIDS Foundation (PWA), St. Michael's Hospital Academic Family Health Team, Wellesley-St. Jamestown site, Dr Peter Centre/Dr Peter AIDS Foundation, AIDS Vancouver, and AIDS Community Care Montreal (ACCM). Kelly K. O’Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the Canadian Institutes of Health Research (Funding Reference Number: CBR-170102). Kelly K. O’Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. Funding Information: The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This research was funded by the Canadian Institutes of Health Research (Funding Reference Number: CBR-170102). Kelly K. O’Brien was supported by a Canada Research Chair (Tier 2) in Episodic Disability and Rehabilitation from the Canada Research Chairs Program. Ahmed M. Bayoumi was supported by the Fondation Alma and Baxter Ricard Chair in Inner City Health at St. Michael's Hospital and the University of Toronto. Publisher Copyright: © The Author(s) 2023.

PY - 2023/1/1

Y1 - 2023/1/1

N2 - Purpose: We assessed the sensibility, utility, and implementation considerations of the Short-Form HIV Disability Questionnaire (SF-HDQ) in community-based settings. Methods: We conducted a mixed-methods study with adults living with HIV and community providers in seven community sites in Canada. We administered the SF-HDQ, a sensibility questionnaire and conducted semi-structured interviews. The SF-HDQ was sensible if median scores were ≥5/7(adults living with HIV) and ≥4/7(community providers) for ≥80% of the sensibility questionnaire items. Qualitative interview data were analyzed using content analysis. Results: Median sensibility scores were ≥5 for adults living with HIV (n = 44) and ≥4 for community providers (n = 10) for 95% and 100% of items, respectively. The SF-HDQ is comprehensive, represented disability, captured its episodic nature, and was easy to complete. Community utility included: facilitating communication and engagement with community; taking a snapshot of disability and tracking changes over time; guiding referrals; fostering self-reflection; and informing community programs. Considerations for implementation included flexible, person-centered approaches to mode and processes of administration, and communicating scores based on personal preferences among persons living with HIV. Conclusion: The SF-HDQ possesses sensibility and utility for use in community-based settings.

AB - Purpose: We assessed the sensibility, utility, and implementation considerations of the Short-Form HIV Disability Questionnaire (SF-HDQ) in community-based settings. Methods: We conducted a mixed-methods study with adults living with HIV and community providers in seven community sites in Canada. We administered the SF-HDQ, a sensibility questionnaire and conducted semi-structured interviews. The SF-HDQ was sensible if median scores were ≥5/7(adults living with HIV) and ≥4/7(community providers) for ≥80% of the sensibility questionnaire items. Qualitative interview data were analyzed using content analysis. Results: Median sensibility scores were ≥5 for adults living with HIV (n = 44) and ≥4 for community providers (n = 10) for 95% and 100% of items, respectively. The SF-HDQ is comprehensive, represented disability, captured its episodic nature, and was easy to complete. Community utility included: facilitating communication and engagement with community; taking a snapshot of disability and tracking changes over time; guiding referrals; fostering self-reflection; and informing community programs. Considerations for implementation included flexible, person-centered approaches to mode and processes of administration, and communicating scores based on personal preferences among persons living with HIV. Conclusion: The SF-HDQ possesses sensibility and utility for use in community-based settings.

KW - community-based research

KW - disability

KW - HIV

KW - measurement

UR - http://www.scopus.com/inward/record.url?scp=85177665498&partnerID=8YFLogxK

U2 - 10.1177/23259582231210801

DO - 10.1177/23259582231210801

M3 - Article

AN - SCOPUS:85177665498

SN - 2325-9574

VL - 22

JO - Journal of the International Association of Providers of AIDS Care

JF - Journal of the International Association of Providers of AIDS Care

ER -

Short-Form HIV Disability Questionnaire Sensibility, Utility, and Implementation Considerations in Community-Based Settings: A Mixed Methods Study

Abstract

Keywords

UN SDGs

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