The challenges and opportunities of mental health data sharing in the UK

TY - JOUR

T1 - The challenges and opportunities of mental health data sharing in the UK

AU - Ford, Tamsin

AU - Mansfield, Karen L

AU - Markham, Sarah

AU - McManus, Sally

AU - John, Ann

AU - O'Reilly, Dermot

AU - Newlove-Delgado, Tamsin

AU - Iveson, Matthew H

AU - Fazel, Mina

AU - Munshi, Jayati Das

AU - Dutta, Rina

AU - Leavy, Gerard

AU - Downs, Johnny

AU - Foley, Tom

AU - Russell, Abigail

AU - Maguire, Aideen

AU - Moon, Graham

AU - Kirkham, Elizabeth J

AU - Finning, Katie

AU - Russell, Ginny

AU - Moore, Anna

AU - Jones, Peter B

AU - Shenow, Sarah

N1 - Funding Information: SMc reports institutional funding from NHS Digital, outside of this Comment. TN-D reports that they are an author of the Mental Health of Children and Young People in England 2020 Survey report and has two applications submitted to NHS Digital for access to survey data. JDM reports grants from the National Institute for Health Research (NIHIR), the Economic and Social Research Council (ESRC), and the Health Foundation, outside of this Comment. PBJ reports salary support from the Higher Education Funding Council through the University of Cambridge and from the NHS. TFol reports employment by NHS Digital, outside of this Comment. All other authors declare no competing interests. KLM is funded by the NIHR Oxford Health NHS Foundation Trust Biomedical Research Centre. JDM is partly supported by the ESRC Centre for Society and Mental Health at King's College London (ESRC reference ES/S012567/1), a jointly funded clinical fellowship from the Health Foundation and Academy of Medical Sciences, and the NIHR Applied Research Collaboration South London at King's College Hospital NHS Foundation Trust. JD and JDM are partly supported by the NIHR Biomedical Research Centre at South London and Maudsley NHS Foundation Trust. MF was funded by the NIHR Applied Research Collaboration Oxford and Thames Valley at Oxford Health NHS Foundation Trust. AR is supported by an NIHR advanced fellowship (NIHR300591). KF received funding from Place2Be, Research England's Strategic Priorities Fund, and the ESRC postdoctoral fellowship scheme (ES/V011936/1). AJ is funded by MQ and the Medical Research Council. TN-D is supported by an NIHR advanced fellowship (NIHR300056). The views expressed in this Comment are those of the authors and not necessarily those of the NIHR, the ESRC, the Department of Health and Social Care, or NHS Digital. We are grateful for MQ's support in organising the series of teleconferences and workshops that resulted in the content of this Comment. In particular, we thank Eva Wölbert and Peter B Jones for facilitating the workshop, Sarah Shenow for supporting the survey of researchers' experiences and helping to refine the implementation actions required in the sector, Abigail Russell for leading the survey, Taj Sallamuddin for his advice on the impact of the GDPR on delays in accessing data and for improving figure 1 in our appendix , and our contacts at NHS Digital for supporting the workshop and providing invaluable comments and advice. Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

PY - 2021/6

Y1 - 2021/6

UR - http://www.scopus.com/inward/record.url?scp=85106394212&partnerID=8YFLogxK

U2 - 10.1016/S2589-7500(21)00078-9

DO - 10.1016/S2589-7500(21)00078-9

M3 - Article

C2 - 34044999

SN - 2589-7500

VL - 3

SP - e333-e336

JO - The Lancet Digital Health

JF - The Lancet Digital Health

IS - 6

ER -