TY - JOUR
T1 - The impact of COVID-19 on trial participants’ engagement with IBD-BOOST
T2 - a digital cognitive behavioural intervention
AU - Honzlova, Zora
AU - Stagg, Imogen
AU - Miller, Laura
AU - Norton, Christine
AU - Moss-Morris, Rona
AU - Sweeney, Louise
AU - Wileman, Vari
N1 - Funding Information:
The IBD-BOOST programme has been tested in a randomised-controlled trial (RCT) funded by the National Institute of Health Research (Project ID: RP-PG-0216-20001) (). All participants continued to have access to their standard IBD care as usual (CAU) via primary and secondary care teams. For the duration of their participation, the intervention group had access to both CAU and the BOOST programme, whereas the control group had only access to CAU.
Publisher Copyright:
© 2024 MA Healthcare Ltd.
PY - 2024/3/2
Y1 - 2024/3/2
N2 - Background/Aims: The COVID-19 pandemic coincided with a randomised-controlled trial of an online-supported self-management intervention for fatigue, pain and urgency in inflammatory bowel disease (IBD). The aim of the present study was to investigate how the pandemic affected engagement with the IBD-BOOST programme. Methods: Intervention participants were invited to complete an online survey at 6-month follow-up, including both pre-defined and open-ended questions. A mixed methods quantitative and qualitative analyses were conducted. People who had participated in the online intervention (n= 354) were invited to answer questions about the impact of COVID-19 on their ability to engage with the online intervention Results: A total of 171 (48.31%) responded to the survey, with their experiences of the pandemic encompassing both negative and positive impacts on their engagement, as well as those who felt that the pandemic had no impact. For those who reported negative impact (19.30%): the pandemic created additional work and home-life responsibilities, the pandemic-induced emotional and psychological burden contributed to decreased participation, and engagement was reduced due to direct COVID-19 infection. For those who reported a positive impact (9.94%): the pandemic allowed for increased time availability due to pandemic-induced lifestyle changes. For those who felt the pandemic had no impact (50.29%): adaptability helped to maintain their engagement. The remaining 20.47% of participants reported that they were uncertain, or that their involvement varied. Conclusion: For some participants, the pandemic negatively impacted their engagement. However, 60% reported that the pandemic had either no or a positive impact on their engagement with IBD-BOOST, indicating the resilience of online delivery of behavioural interventions.
AB - Background/Aims: The COVID-19 pandemic coincided with a randomised-controlled trial of an online-supported self-management intervention for fatigue, pain and urgency in inflammatory bowel disease (IBD). The aim of the present study was to investigate how the pandemic affected engagement with the IBD-BOOST programme. Methods: Intervention participants were invited to complete an online survey at 6-month follow-up, including both pre-defined and open-ended questions. A mixed methods quantitative and qualitative analyses were conducted. People who had participated in the online intervention (n= 354) were invited to answer questions about the impact of COVID-19 on their ability to engage with the online intervention Results: A total of 171 (48.31%) responded to the survey, with their experiences of the pandemic encompassing both negative and positive impacts on their engagement, as well as those who felt that the pandemic had no impact. For those who reported negative impact (19.30%): the pandemic created additional work and home-life responsibilities, the pandemic-induced emotional and psychological burden contributed to decreased participation, and engagement was reduced due to direct COVID-19 infection. For those who reported a positive impact (9.94%): the pandemic allowed for increased time availability due to pandemic-induced lifestyle changes. For those who felt the pandemic had no impact (50.29%): adaptability helped to maintain their engagement. The remaining 20.47% of participants reported that they were uncertain, or that their involvement varied. Conclusion: For some participants, the pandemic negatively impacted their engagement. However, 60% reported that the pandemic had either no or a positive impact on their engagement with IBD-BOOST, indicating the resilience of online delivery of behavioural interventions.
UR - http://www.scopus.com/inward/record.url?scp=85187981762&partnerID=8YFLogxK
U2 - 10.12968/gasn.2024.22.2.114
DO - 10.12968/gasn.2024.22.2.114
M3 - Article
AN - SCOPUS:85187981762
SN - 1479-5248
VL - 22
SP - 114
EP - 122
JO - Gastrointestinal Nursing
JF - Gastrointestinal Nursing
IS - 2
ER -
