The impact of Inflammatory Bowel Disease related fatigue on Health-Related Quality of Life: a qualitative semi-structured interview study

Shellie J. Radford*, Gordon W. Moran, Wladyslawa Czuber-Dochan

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

1 Citation (Scopus)

Abstract

Background: Fatigue is a frequently reported symptom of Inflammatory Bowel Disease (IBD), having a negative impact on Health-Related Quality of Life (HRQoL). Patients’ experiences of this have not been researched in IBD. Methods: Semi-structured interviews were conducted with adults with Crohn’s Disease from out-patient clinics in the United Kingdom. Interviews were audio-recorded and transcribed verbatim, then analysed using thematic analysis. Results: Fourteen participant interviews were conducted. Three key themes were identified: 1) ‘The new normal’ established through adaptation and acceptance; 2) ‘Energy as a resource’ describing attempts to better manage fatigue through planning and prioritising tasks; 3) ‘Keeping healthy’ encompasses participants’ beliefs that ‘good health’ allows better management of fatigue. Conclusion: Participants establish a ‘new’ normality, through maintaining the same or similar level of employment/education activities. However, this is often at the expense of social activities. Further research is required to explore patient led self-management interventions in IBD fatigue.

Original languageEnglish
Pages (from-to)685-702
Number of pages18
JournalJournal of Research in Nursing
Volume27
Issue number8
DOIs
Publication statusPublished - Dec 2022

Keywords

  • Crohn’s disease
  • fatigue
  • health related quality of life
  • inflammatory bowel disease
  • interview

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