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Abstract
Purpose
The involvement of patients or members of the public within public health, health and social care, and addictions services is growing in the UK and internationally but is less common in gambling support services. The purpose of this study was to explore Patient and Public Involvement (PPI) infrastructures and engagement channels used in health and care services and debate their transferability to the gambling support sector (including research, education and treatment).
Design
A narrative review examined data from six English language electronic databases, NHS evidence and grey literature covering the period 2007-2019. We identified 130 relevant items from UK literature. A workshop was held in London, England, with people with lived experience of gambling harm to seek their views on and applicability of the review findings to gambling services.
Findings
Synthesis of literature and workshop data was undertaken. Main themes addressed ‘What works’ in relation to: Building infrastructures and organising involvement of people with lived experience; What people want to be involved in; Widening participation and sustaining involvement; and Respecting people with lived experience.
Originality
The involvement of people with lived experience of gambling harms in gambling support services is under-explored, with little published evidence of what constitutes good practice amongst self-organising groups/networks/grassroots organisations or rightsbased/empowerment-based approaches.
Implications for practice
Examination of the literature about involvement and engagement of patients, service users and the public in public health, health and social care, and addiction services provides potentially useful examples of good practice which may be adopted by gambling services.
The involvement of patients or members of the public within public health, health and social care, and addictions services is growing in the UK and internationally but is less common in gambling support services. The purpose of this study was to explore Patient and Public Involvement (PPI) infrastructures and engagement channels used in health and care services and debate their transferability to the gambling support sector (including research, education and treatment).
Design
A narrative review examined data from six English language electronic databases, NHS evidence and grey literature covering the period 2007-2019. We identified 130 relevant items from UK literature. A workshop was held in London, England, with people with lived experience of gambling harm to seek their views on and applicability of the review findings to gambling services.
Findings
Synthesis of literature and workshop data was undertaken. Main themes addressed ‘What works’ in relation to: Building infrastructures and organising involvement of people with lived experience; What people want to be involved in; Widening participation and sustaining involvement; and Respecting people with lived experience.
Originality
The involvement of people with lived experience of gambling harms in gambling support services is under-explored, with little published evidence of what constitutes good practice amongst self-organising groups/networks/grassroots organisations or rightsbased/empowerment-based approaches.
Implications for practice
Examination of the literature about involvement and engagement of patients, service users and the public in public health, health and social care, and addiction services provides potentially useful examples of good practice which may be adopted by gambling services.
| Original language | English |
|---|---|
| Pages (from-to) | 189-202 |
| Number of pages | 14 |
| Journal | Journal of Integrated Care |
| Volume | 30 |
| Issue number | 2 |
| DOIs | |
| Publication status | Published - 2 Feb 2022 |
Keywords
- gambling
- engagement
- mental health
- health and social care
- addictions
- Patient and Public Involvement
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Dive into the research topics of 'Transferable learning about patient and public involvement and engagement in gambling support services from health and social care: findings from a narrative review and workshop with people with lived experience'. Together they form a unique fingerprint.Research output
- 4 Citations
- 1 Commissioned report
-
Exploring “what works” in creating infrastructures and engagement methods for people with lived experience within public health, health and social care, and addiction research
Bramley, S., Norrie, C., Lipman, V. & Manthorpe, J., 1 Jun 2020, London: NIHR Policy Research Unit in Health and Social Care Workforce, The Policy Institute, King's College London. 51 p.Research output: Book/Report › Commissioned report › peer-review
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