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Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study

Research output: Contribution to journalArticlepeer-review

Jennifer M. Ryan, Michael Walsh, Mary Owens, Michael Byrne, Thilo Kroll, Owen Hensey, Claire Kerr, Meriel Norris, Aisling Walsh, Grace Lavelle, Jennifer Fortune

Original languageEnglish
JournalDevelopmental Medicine and Child Neurology
Accepted/In press2022

Bibliographical note

Funding Information: This research was funded by the Health Research Board and the Central Remedial Clinic (no. APA‐2019‐004). Publisher Copyright: © 2022 The Authors. Developmental Medicine & Child Neurology published by John Wiley & Sons Ltd on behalf of Mac Keith Press.

King's Authors


Aim: To assess if young people with cerebral palsy experience and health professionals provide practices that may improve transition from child to adult health services. Method: Seventy-five young people (31 females, 44 males; mean age 18 years 5 months [standard deviation 2 years 2 months]) and/or parents and 108 health professionals completed a questionnaire describing their experience or the provision of nine transition practices. Results: The percentage of young people reporting each practice was: appropriate parent involvement (90%); promotion of health self-efficacy (37%); named worker who supports the transition process (36%); self-management support for physical health (36%); self-management support for mental health (17%); information about the transition process (24%); meeting the adult team (16%); and life skills training (16%). Post-discharge, 10% of young people reported that their general practitioner (GP) received a discharge letter. The percentage of health professionals reporting each practice was: promotion of health self-efficacy (73.2%); self-management support (73.2%); information (69%); consulting the parent and young person about parent involvement (63% and 66%); discharge letter to a GP (55%); life skills training (36%); named worker (35%); meeting the adult team (30%); and senior manager (20%). Interpretation: Many young people did not experience practices that may improve the experience and outcomes of transition. Young people should be involved in the development and delivery of transition to ensure it meets their needs.

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