TY - JOUR
T1 - Translation, reliability and validity of the Greek version of the Child Engagement in Daily Life in children with cerebral palsy
AU - Dimakopoulos, Rigas
AU - Papadopoulou, Μarianna
AU - Pons, Roser
AU - Spinou, Arietta
N1 - Publisher Copyright:
© 2023 The Authors. Child: Care, Health and Development published by John Wiley & Sons Ltd.
PY - 2024/1
Y1 - 2024/1
N2 - Background: Participation in family, recreational activities and self-care is an integral part of health. It is also a main outcome of rehabilitation services for children and adolescents with disabilities. However, there are currently no available tools in Greek to assess participation in young children. Methods: The Child Engagement in Daily Life (CEDL) was cross-culturally translated into Greek using forward–backward translation, review by expert committee, pretest application and final review. Parents with children who have been diagnosed with cerebral palsy (CP) and were 18 months to 5 years old were recruited. Internal consistency was evaluated using the Cronbach alpha and test–retest reliability in 2 weeks using intra-class correlation coefficient (ICC) and Bland–Altman plot for the agreement of each domain score. Measurement error was assessed utilising the standard error of measurement (SEM) and the smallest detectable change (SDC) and interpretability was assessed using the floor and ceiling effects. Validity was evaluated using the ‘known groups’ method, that is, assessing parents of children with typical development (TD). Results: One hundred and seven children with CP (mean age 43.63 ± 13.5 months), Gross Motor Function Classification System (GMFCS) levels I–V and 97 children with TD (mean age 43.63 ± 14.4 months) were included. Significant differences (p < 0.01) between children with CP and children with TD were recorded for all CEDL domains. Mean ± standard deviation of the CEDL domains ‘frequency of participation’, ‘enjoyment of participation’ and ‘self-care’ were 58.8 ± 14.5, 3.9 ± 0.9 and 49.7 ± 23.5, respectively for children with CP and 62.3 ± 9.1, 4.4 ± 0.9 and 74.2 ± 15 for children with TD. Internal consistency of all domains was high; Cronbach alpha for ‘frequency of participation’ was 0.83, for ‘enjoyment of participation’ was 0.76 and for ‘self-care’ was 0.92. Test–retest reliability (ICC) was excellent for the ‘self-care’ (0.95) and good for ‘frequency of participation’ and ‘enjoyment of participation’ domains (0.90 and 0.88, respectively) while Bland–Altman analysis revealed no systematic differences or bias between the two measurements. SEM was 0.8, 0.05 and 1.6 for frequency of participation, enjoyment and self-care with SDC of 2.4, 0.16 and 4.5, respectively. No relevant floor and ceiling effects were observed. Conclusion: The Greek CEDL has good reliability, validity and interpretability. It can be used to evaluate participation in Greek young children with CP. Future studies should investigate the validity of this tool in longer periods and its responsiveness to intervention.
AB - Background: Participation in family, recreational activities and self-care is an integral part of health. It is also a main outcome of rehabilitation services for children and adolescents with disabilities. However, there are currently no available tools in Greek to assess participation in young children. Methods: The Child Engagement in Daily Life (CEDL) was cross-culturally translated into Greek using forward–backward translation, review by expert committee, pretest application and final review. Parents with children who have been diagnosed with cerebral palsy (CP) and were 18 months to 5 years old were recruited. Internal consistency was evaluated using the Cronbach alpha and test–retest reliability in 2 weeks using intra-class correlation coefficient (ICC) and Bland–Altman plot for the agreement of each domain score. Measurement error was assessed utilising the standard error of measurement (SEM) and the smallest detectable change (SDC) and interpretability was assessed using the floor and ceiling effects. Validity was evaluated using the ‘known groups’ method, that is, assessing parents of children with typical development (TD). Results: One hundred and seven children with CP (mean age 43.63 ± 13.5 months), Gross Motor Function Classification System (GMFCS) levels I–V and 97 children with TD (mean age 43.63 ± 14.4 months) were included. Significant differences (p < 0.01) between children with CP and children with TD were recorded for all CEDL domains. Mean ± standard deviation of the CEDL domains ‘frequency of participation’, ‘enjoyment of participation’ and ‘self-care’ were 58.8 ± 14.5, 3.9 ± 0.9 and 49.7 ± 23.5, respectively for children with CP and 62.3 ± 9.1, 4.4 ± 0.9 and 74.2 ± 15 for children with TD. Internal consistency of all domains was high; Cronbach alpha for ‘frequency of participation’ was 0.83, for ‘enjoyment of participation’ was 0.76 and for ‘self-care’ was 0.92. Test–retest reliability (ICC) was excellent for the ‘self-care’ (0.95) and good for ‘frequency of participation’ and ‘enjoyment of participation’ domains (0.90 and 0.88, respectively) while Bland–Altman analysis revealed no systematic differences or bias between the two measurements. SEM was 0.8, 0.05 and 1.6 for frequency of participation, enjoyment and self-care with SDC of 2.4, 0.16 and 4.5, respectively. No relevant floor and ceiling effects were observed. Conclusion: The Greek CEDL has good reliability, validity and interpretability. It can be used to evaluate participation in Greek young children with CP. Future studies should investigate the validity of this tool in longer periods and its responsiveness to intervention.
KW - child
KW - Child Engagement in Daily Life
KW - disabilities
KW - participation
UR - http://www.scopus.com/inward/record.url?scp=85176956574&partnerID=8YFLogxK
U2 - 10.1111/cch.13202
DO - 10.1111/cch.13202
M3 - Article
C2 - 37964491
AN - SCOPUS:85176956574
SN - 0305-1862
VL - 50
JO - Child: Care, Health and Development
JF - Child: Care, Health and Development
IS - 1
M1 - e13202
ER -