King's College London

Research portal

Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study

Research output: Contribution to journalArticle

Standard

Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure : A qualitative study. / Kane, Pauline M; Ellis-Smith, Clare I; Daveson, Barbara A; Ryan, Karen; Mahon, Niall G; McAdam, Brendan; McQuillan, Regina; Tracey, Cecelia; Howley, Christine; O'Gara, Geraldine; Raleigh, Caroline; Higginson, Irene J; Murtagh, Fliss Em; Koffman, Jonathan; BuildCARE.

In: Palliative Medicine, Vol. 32, No. 1, 01.01.2018, p. 143-155.

Research output: Contribution to journalArticle

Harvard

Kane, PM, Ellis-Smith, CI, Daveson, BA, Ryan, K, Mahon, NG, McAdam, B, McQuillan, R, Tracey, C, Howley, C, O'Gara, G, Raleigh, C, Higginson, IJ, Murtagh, FE, Koffman, J & BuildCARE 2018, 'Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study', Palliative Medicine, vol. 32, no. 1, pp. 143-155. https://doi.org/10.1177/0269216317738161

APA

Kane, P. M., Ellis-Smith, C. I., Daveson, B. A., Ryan, K., Mahon, N. G., McAdam, B., ... BuildCARE (2018). Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study. Palliative Medicine, 32(1), 143-155. https://doi.org/10.1177/0269216317738161

Vancouver

Kane PM, Ellis-Smith CI, Daveson BA, Ryan K, Mahon NG, McAdam B et al. Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study. Palliative Medicine. 2018 Jan 1;32(1):143-155. https://doi.org/10.1177/0269216317738161

Author

Kane, Pauline M ; Ellis-Smith, Clare I ; Daveson, Barbara A ; Ryan, Karen ; Mahon, Niall G ; McAdam, Brendan ; McQuillan, Regina ; Tracey, Cecelia ; Howley, Christine ; O'Gara, Geraldine ; Raleigh, Caroline ; Higginson, Irene J ; Murtagh, Fliss Em ; Koffman, Jonathan ; BuildCARE. / Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure : A qualitative study. In: Palliative Medicine. 2018 ; Vol. 32, No. 1. pp. 143-155.

Bibtex Download

@article{fe976a915a974c63811740c1f931d115,
title = "Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure: A qualitative study",
abstract = "Background: Palliative care needs of patients with chronic heart failure are poorly recognised. Policy makers advise a patient-centred approach to holistically assess patients’ needs and care goals. Patient-reported outcome measures are proposed to facilitate patient-centred care. Aim: To explore whether and how a palliative care–specific patient-reported outcome intervention involving the Integrated Palliative care Outcome Scale influences patients’ experience of patient-centred care in nurse-led chronic heart failure disease management clinics. Design: A feasibility study using a parallel mixed-methods embedded design was undertaken. The qualitative component which examined patients and nurses experience of the intervention is reported here. Semi-structured interviews were conducted and analysed using framework analysis. Setting/participants: Eligible patients attended nurse-led chronic heart failure disease management clinics in two tertiary referral centres in Ireland with New York Heart Association functional class II–IV. Nurses who led these clinics were eligible for inclusion. Results: In all, 18 patients and all 4 nurses involved in the nurse-led clinics were interviewed. Three key themes were identified: identification of unmet needs, holistic assessment and patient empowerment. The intervention impacted on processes of care by enabling a shared understanding of patients’ symptoms and concerns, facilitating patient–nurse communication by focusing on these unmet needs and empowering patients to become more involved in clinical discussions. Conclusion: This Integrated Palliative care Outcome Scale–based intervention empowered patients to become more engaged in the clinical consultation and to highlight their unmet needs. This study adds to the evidence for the mechanism of action of patient-reported outcome measures to improve patient-centred care and will help inform outcome selection for future patient-reported outcome measure research.",
keywords = "heart failure, Palliative care, patient-reported outcome measure, qualitative",
author = "Kane, {Pauline M} and Ellis-Smith, {Clare I} and Daveson, {Barbara A} and Karen Ryan and Mahon, {Niall G} and Brendan McAdam and Regina McQuillan and Cecelia Tracey and Christine Howley and Geraldine O'Gara and Caroline Raleigh and Higginson, {Irene J} and Murtagh, {Fliss Em} and Jonathan Koffman and BuildCARE",
year = "2018",
month = "1",
day = "1",
doi = "10.1177/0269216317738161",
language = "English",
volume = "32",
pages = "143--155",
journal = "Palliative Medicine",
issn = "0269-2163",
number = "1",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - Understanding how a palliative-specific patient-reported outcome intervention works to facilitate patient-centred care in advanced heart failure

T2 - A qualitative study

AU - Kane, Pauline M

AU - Ellis-Smith, Clare I

AU - Daveson, Barbara A

AU - Ryan, Karen

AU - Mahon, Niall G

AU - McAdam, Brendan

AU - McQuillan, Regina

AU - Tracey, Cecelia

AU - Howley, Christine

AU - O'Gara, Geraldine

AU - Raleigh, Caroline

AU - Higginson, Irene J

AU - Murtagh, Fliss Em

AU - Koffman, Jonathan

AU - BuildCARE

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Background: Palliative care needs of patients with chronic heart failure are poorly recognised. Policy makers advise a patient-centred approach to holistically assess patients’ needs and care goals. Patient-reported outcome measures are proposed to facilitate patient-centred care. Aim: To explore whether and how a palliative care–specific patient-reported outcome intervention involving the Integrated Palliative care Outcome Scale influences patients’ experience of patient-centred care in nurse-led chronic heart failure disease management clinics. Design: A feasibility study using a parallel mixed-methods embedded design was undertaken. The qualitative component which examined patients and nurses experience of the intervention is reported here. Semi-structured interviews were conducted and analysed using framework analysis. Setting/participants: Eligible patients attended nurse-led chronic heart failure disease management clinics in two tertiary referral centres in Ireland with New York Heart Association functional class II–IV. Nurses who led these clinics were eligible for inclusion. Results: In all, 18 patients and all 4 nurses involved in the nurse-led clinics were interviewed. Three key themes were identified: identification of unmet needs, holistic assessment and patient empowerment. The intervention impacted on processes of care by enabling a shared understanding of patients’ symptoms and concerns, facilitating patient–nurse communication by focusing on these unmet needs and empowering patients to become more involved in clinical discussions. Conclusion: This Integrated Palliative care Outcome Scale–based intervention empowered patients to become more engaged in the clinical consultation and to highlight their unmet needs. This study adds to the evidence for the mechanism of action of patient-reported outcome measures to improve patient-centred care and will help inform outcome selection for future patient-reported outcome measure research.

AB - Background: Palliative care needs of patients with chronic heart failure are poorly recognised. Policy makers advise a patient-centred approach to holistically assess patients’ needs and care goals. Patient-reported outcome measures are proposed to facilitate patient-centred care. Aim: To explore whether and how a palliative care–specific patient-reported outcome intervention involving the Integrated Palliative care Outcome Scale influences patients’ experience of patient-centred care in nurse-led chronic heart failure disease management clinics. Design: A feasibility study using a parallel mixed-methods embedded design was undertaken. The qualitative component which examined patients and nurses experience of the intervention is reported here. Semi-structured interviews were conducted and analysed using framework analysis. Setting/participants: Eligible patients attended nurse-led chronic heart failure disease management clinics in two tertiary referral centres in Ireland with New York Heart Association functional class II–IV. Nurses who led these clinics were eligible for inclusion. Results: In all, 18 patients and all 4 nurses involved in the nurse-led clinics were interviewed. Three key themes were identified: identification of unmet needs, holistic assessment and patient empowerment. The intervention impacted on processes of care by enabling a shared understanding of patients’ symptoms and concerns, facilitating patient–nurse communication by focusing on these unmet needs and empowering patients to become more involved in clinical discussions. Conclusion: This Integrated Palliative care Outcome Scale–based intervention empowered patients to become more engaged in the clinical consultation and to highlight their unmet needs. This study adds to the evidence for the mechanism of action of patient-reported outcome measures to improve patient-centred care and will help inform outcome selection for future patient-reported outcome measure research.

KW - heart failure

KW - Palliative care

KW - patient-reported outcome measure

KW - qualitative

UR - http://www.scopus.com/inward/record.url?scp=85043456599&partnerID=8YFLogxK

U2 - 10.1177/0269216317738161

DO - 10.1177/0269216317738161

M3 - Article

C2 - 29154724

VL - 32

SP - 143

EP - 155

JO - Palliative Medicine

JF - Palliative Medicine

SN - 0269-2163

IS - 1

ER -

View graph of relations

© 2018 King's College London | Strand | London WC2R 2LS | England | United Kingdom | Tel +44 (0)20 7836 5454