Understanding the palliative care needs of heart failure patients

Elena Ivany, Alison While

Research output: Contribution to journalArticlepeer-review

9 Citations (Scopus)

Abstract

It is increasingly recognised that end-of-life care is suboptimal, especially for those with advanced non-malignant diseases. This study shows that individuals living with heart failure have a number of palliative care needs, including education, communication, symptom management and psychosocial needs. Clinicians struggled to discuss palliation with heart failure patients due to the unclear disease trajectory and cardiac-specific barriers to identifying palliation needs. Carers reported a need for greater social support and better guidance on best practice care. Furthermore, patients struggled to cope physically and psychologically with their reduced physical capabilities and were fearful of being a burden to their carers. Both patients and clinicians recognised a discontinuity between secondary and primary care, which has particular resonance in the context of the intention to relocate care nearer home.
Original languageEnglish
Article numberN/A
Pages (from-to)441-445
Number of pages5
JournalBritish Journal of Community Nursing
Volume18
Issue number9
Publication statusPublished - 5 Sept 2013

Keywords

  • Continuity of Patient Care
  • Health Services Needs and Demand
  • Heart Failure
  • Humans
  • Nurse's Role
  • Palliative Care
  • Patient Education as Topic
  • Practice Guidelines as Topic
  • Social Support

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