King's College London

Research portal

Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients

Research output: Contribution to journalArticle

Standard

Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients. / Dimidi, Eirini; Dibley, Lesley; Cotterill, Nikki; Scott, Mark; Whelan, Kevin; Knowles, Charles H.; Norton, Christine.

In: Gastrointestinal Nursing, Vol. 14, No. 8, 20.10.2016, p. 29-38.

Research output: Contribution to journalArticle

Harvard

Dimidi, E, Dibley, L, Cotterill, N, Scott, M, Whelan, K, Knowles, CH & Norton, C 2016, 'Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients', Gastrointestinal Nursing, vol. 14, no. 8, pp. 29-38. https://doi.org/10.12968/gasn.2016.14.8.29

APA

Dimidi, E., Dibley, L., Cotterill, N., Scott, M., Whelan, K., Knowles, C. H., & Norton, C. (2016). Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients. Gastrointestinal Nursing, 14(8), 29-38. https://doi.org/10.12968/gasn.2016.14.8.29

Vancouver

Dimidi E, Dibley L, Cotterill N, Scott M, Whelan K, Knowles CH et al. Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients. Gastrointestinal Nursing. 2016 Oct 20;14(8):29-38. https://doi.org/10.12968/gasn.2016.14.8.29

Author

Dimidi, Eirini ; Dibley, Lesley ; Cotterill, Nikki ; Scott, Mark ; Whelan, Kevin ; Knowles, Charles H. ; Norton, Christine. / Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients. In: Gastrointestinal Nursing. 2016 ; Vol. 14, No. 8. pp. 29-38.

Bibtex Download

@article{4ca7b38987b844a08a2663d48e97ac06,
title = "Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients",
abstract = "Patients' self-reported constipation symptoms, preferred terminology and quality of life (QoL) issues were explored through 14 semi-structured and five unstructured interviews. In a modified Delphi study, 11 clinicians rated the clinical importance of patient-reported symptoms and QoL issues. Results were compared with validated constipation assessment tools, using content and inductive thematic analysis methods. Three themes were identified: language describing constipation; symptoms and toilet behaviours; and QoL issues. Preferred terms for describing faeces and defecating were identified. Few of the 32 troublesome symptoms or QoL issues reported by participants appear in existing validated tools. All clinicians rated uncontrolled leakage of stool as clinically important, yet this is absent from assessment tools. It was concluded that present validated tools neither reflect patient concerns nor use language familiar to them, which may generate inaccurate assessment. A larger study may inform development of new patientreported outcome measures.",
keywords = "Constipation, Qualitative research, Quality of life, Symptom assessment, Terminology",
author = "Eirini Dimidi and Lesley Dibley and Nikki Cotterill and Mark Scott and Kevin Whelan and Knowles, {Charles H.} and Christine Norton",
year = "2016",
month = "10",
day = "20",
doi = "10.12968/gasn.2016.14.8.29",
language = "English",
volume = "14",
pages = "29--38",
journal = "Gastrointestinal Nursing",
issn = "1479-5248",
number = "8",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients

AU - Dimidi, Eirini

AU - Dibley, Lesley

AU - Cotterill, Nikki

AU - Scott, Mark

AU - Whelan, Kevin

AU - Knowles, Charles H.

AU - Norton, Christine

PY - 2016/10/20

Y1 - 2016/10/20

N2 - Patients' self-reported constipation symptoms, preferred terminology and quality of life (QoL) issues were explored through 14 semi-structured and five unstructured interviews. In a modified Delphi study, 11 clinicians rated the clinical importance of patient-reported symptoms and QoL issues. Results were compared with validated constipation assessment tools, using content and inductive thematic analysis methods. Three themes were identified: language describing constipation; symptoms and toilet behaviours; and QoL issues. Preferred terms for describing faeces and defecating were identified. Few of the 32 troublesome symptoms or QoL issues reported by participants appear in existing validated tools. All clinicians rated uncontrolled leakage of stool as clinically important, yet this is absent from assessment tools. It was concluded that present validated tools neither reflect patient concerns nor use language familiar to them, which may generate inaccurate assessment. A larger study may inform development of new patientreported outcome measures.

AB - Patients' self-reported constipation symptoms, preferred terminology and quality of life (QoL) issues were explored through 14 semi-structured and five unstructured interviews. In a modified Delphi study, 11 clinicians rated the clinical importance of patient-reported symptoms and QoL issues. Results were compared with validated constipation assessment tools, using content and inductive thematic analysis methods. Three themes were identified: language describing constipation; symptoms and toilet behaviours; and QoL issues. Preferred terms for describing faeces and defecating were identified. Few of the 32 troublesome symptoms or QoL issues reported by participants appear in existing validated tools. All clinicians rated uncontrolled leakage of stool as clinically important, yet this is absent from assessment tools. It was concluded that present validated tools neither reflect patient concerns nor use language familiar to them, which may generate inaccurate assessment. A larger study may inform development of new patientreported outcome measures.

KW - Constipation

KW - Qualitative research

KW - Quality of life

KW - Symptom assessment

KW - Terminology

UR - http://www.scopus.com/inward/record.url?scp=84994765093&partnerID=8YFLogxK

U2 - 10.12968/gasn.2016.14.8.29

DO - 10.12968/gasn.2016.14.8.29

M3 - Article

AN - SCOPUS:84994765093

VL - 14

SP - 29

EP - 38

JO - Gastrointestinal Nursing

JF - Gastrointestinal Nursing

SN - 1479-5248

IS - 8

ER -

View graph of relations

© 2018 King's College London | Strand | London WC2R 2LS | England | United Kingdom | Tel +44 (0)20 7836 5454