Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis

Mari Carmen Portillo; Elena Regaira; María J. Pumar-Méndez; Agurtzane Mujika; Ivaylo Vassilev; Anne Rogers; Michel Wensing; Christina Foss; Ingrid Ruud Knutsen; Elka Todorova; Poli Roukova; Anne Kennedy; Manuel Serrano; Christos Lionis; Agapi Angelaki; Evridiki Patelarou; Jan Koetsenruijter

doi:10.1177/0145721715594026

Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis

Mari Carmen Portillo^*, Elena Regaira, María J. Pumar-Méndez, Agurtzane Mujika, Ivaylo Vassilev, Anne Rogers, Michel Wensing, Christina Foss, Ingrid Ruud Knutsen, Elka Todorova, Poli Roukova, Anne Kennedy, Manuel Serrano, Christos Lionis, Agapi Angelaki, Evridiki Patelarou, Jan Koetsenruijter

^*Corresponding author for this work

Child & Family Health Nursing

Research output: Contribution to journal › Article › peer-review

15 Citations (Scopus)

Abstract

Purpose The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. Methods A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. Results Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. Conclusions This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of “assistance, support, sharing, and link” seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.

Original language	English
Pages (from-to)	550-568
Number of pages	19
Journal	DIABETES EDUCATOR
Volume	41
Issue number	5
DOIs	https://doi.org/10.1177/0145721715594026
Publication status	Published - 24 Oct 2015

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Portillo, M. C., Regaira, E., Pumar-Méndez, M. J., Mujika, A., Vassilev, I., Rogers, A., Wensing, M., Foss, C., Knutsen, I. R., Todorova, E., Roukova, P., Kennedy, A., Serrano, M., Lionis, C., Angelaki, A., Patelarou, E., & Koetsenruijter, J. (2015). Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis. DIABETES EDUCATOR, 41(5), 550-568. https://doi.org/10.1177/0145721715594026

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title = "Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis",

abstract = "Purpose The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. Methods A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. Results Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. Conclusions This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of “assistance, support, sharing, and link” seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.",

author = "Portillo, {Mari Carmen} and Elena Regaira and Pumar-M{\'e}ndez, {Mar{\'i}a J.} and Agurtzane Mujika and Ivaylo Vassilev and Anne Rogers and Michel Wensing and Christina Foss and Knutsen, {Ingrid Ruud} and Elka Todorova and Poli Roukova and Anne Kennedy and Manuel Serrano and Christos Lionis and Agapi Angelaki and Evridiki Patelarou and Jan Koetsenruijter",

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Portillo, MC, Regaira, E, Pumar-Méndez, MJ, Mujika, A, Vassilev, I, Rogers, A, Wensing, M, Foss, C, Knutsen, IR, Todorova, E, Roukova, P, Kennedy, A, Serrano, M, Lionis, C, Angelaki, A, Patelarou, E & Koetsenruijter, J 2015, 'Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis', DIABETES EDUCATOR, vol. 41, no. 5, pp. 550-568. https://doi.org/10.1177/0145721715594026

TY - JOUR

T1 - Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education

T2 - A Critical Interpretative Synthesis

AU - Portillo, Mari Carmen

AU - Regaira, Elena

AU - Pumar-Méndez, María J.

AU - Mujika, Agurtzane

AU - Vassilev, Ivaylo

AU - Rogers, Anne

AU - Wensing, Michel

AU - Foss, Christina

AU - Knutsen, Ingrid Ruud

AU - Todorova, Elka

AU - Roukova, Poli

AU - Kennedy, Anne

AU - Serrano, Manuel

AU - Lionis, Christos

AU - Angelaki, Agapi

AU - Patelarou, Evridiki

AU - Koetsenruijter, Jan

PY - 2015/10/24

Y1 - 2015/10/24

N2 - Purpose The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. Methods A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. Results Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. Conclusions This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of “assistance, support, sharing, and link” seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.

AB - Purpose The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. Methods A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. Results Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. Conclusions This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of “assistance, support, sharing, and link” seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.

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U2 - 10.1177/0145721715594026

DO - 10.1177/0145721715594026

M3 - Article

AN - SCOPUS:84942093311

SN - 0145-7217

VL - 41

SP - 550

EP - 568

JO - DIABETES EDUCATOR

JF - DIABETES EDUCATOR

IS - 5

ER -

Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis

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