King's College London

Research portal

Voting with their Mice: Personal Genome Testing and the oParticipatory Turno in Disease Research

Research output: Contribution to journalArticlepeer-review

Original languageEnglish
Pages (from-to)132 - 147
Number of pages16
JournalAccountability In Research-Policies And Quality Assurance
Volume18
Issue number3
DOIs
PublishedMay 2011

King's Authors

Abstract

While the availability of genome tests on the internet has given rise to heated debates about the likely impact on personal genome information on test-takers, on insurance, and on healthcare systems, in this article I argue that a more tangible effect of personal genomics is that it has started to change how participation in disease research is conceived and enacted. I examine three models of research participation that personal genomics customers are encouraged to engage in. I conclude with an evaluation of the pitfalls and benefits of ocrowdsourcingo genetic disease research in the context of personal genomics.

View graph of relations

© 2020 King's College London | Strand | London WC2R 2LS | England | United Kingdom | Tel +44 (0)20 7836 5454