Wellbeing among sub-Saharan African patients with advanced HIV and/or cancer: an international multicentred comparison study of two outcome measures

Richard Harding, Lucy Selman, Zippy Ali, Richard A Powell, Eve Namisango, Faith Mwangi-Powell, Liz Gwyther, Nancy Gikaara, Irene J Higginson, Richard J Siegert

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7 Citations (Scopus)
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Abstract

Background
Despite the high mortality rates of HIV and cancer in sub-Saharan Africa, there are few outcome tools and no comparative data across conditions. This study aimed to measure multidimensional wellbeing among advanced HIV and/or cancer patients in three African countries, and determine the relationship between two validated outcome measures.

Methods
Cross-sectional self-reported data from palliative care populations in Kenya, Uganda and South Africa using FACIT-Pal and POS measures.

Results
Among 461 participants across all countries, subscale "social and family wellbeing" had highest (worst) score. Significant country effect showed lower (better) scores for Uganda on FACIT core scale, Personal, Emotional and Family Well-Being subscales. In multiple regression, country and functional status accounted for 21% variance in FACIT-Pal. Worsening functional status was associated with poorer POS score. Kenyans had worse score, followed by Uganda and South Africa. Matrix of correlational coefficients revealed moderate correlation between the POS and FACIT-Pal core scale (0.60), the FACIT-G and POS (0.64), and FACIT-G + Pal with POS (0.66).

Conclusions
The data reveal worst status for family and social wellbeing, which may reflect the sample being from less individualistic societies. The tools appear to measure different constructs of wellbeing in palliative care, and reveal different levels of wellbeing between countries. Those with poorest physical function require greatest palliative and supportive care, and this does not appear to differ according to diagnosis.
Original languageEnglish
Article number80
Number of pages17
JournalHealth and Quality of Life Outcomes
Volume12
Issue number80
Early online date31 May 2014
DOIs
Publication statusPublished - 31 May 2014

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