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What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

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What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS). / Oriani, Anna; Guo, Ping; Gadoud, Amy; Dunleavy, Lesley; Kane, Pauline; Murtagh, Fliss E.M.

In: Annals of Palliative Medicine, Vol. 8, No. 5, 01.11.2019, p. 775-780.

Research output: Contribution to journalArticle

Harvard

Oriani, A, Guo, P, Gadoud, A, Dunleavy, L, Kane, P & Murtagh, FEM 2019, 'What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)', Annals of Palliative Medicine, vol. 8, no. 5, pp. 775-780. https://doi.org/10.21037/apm.2019.08.10

APA

Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P., & Murtagh, F. E. M. (2019). What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS). Annals of Palliative Medicine, 8(5), 775-780. https://doi.org/10.21037/apm.2019.08.10

Vancouver

Oriani A, Guo P, Gadoud A, Dunleavy L, Kane P, Murtagh FEM. What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS). Annals of Palliative Medicine. 2019 Nov 1;8(5):775-780. https://doi.org/10.21037/apm.2019.08.10

Author

Oriani, Anna ; Guo, Ping ; Gadoud, Amy ; Dunleavy, Lesley ; Kane, Pauline ; Murtagh, Fliss E.M. / What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS). In: Annals of Palliative Medicine. 2019 ; Vol. 8, No. 5. pp. 775-780.

Bibtex Download

@article{6ab059e460e346bda51a1d4deff1d61a,
title = "What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)",
abstract = "There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) are specifically developed to capture the main symptoms and concerns of people severely affected by advanced disease. The aim of this study was to determine whether POS and IPOS captures the main symptoms and concerns self-reported by patients with advanced CHF. A secondary analysis of existing POS/IPOS data collected in three longitudinal studies was conducted. POS and IPOS start with an open-ended question for patients to report their main problems and concerns, followed by subsequent closed questions on a range of symptoms and other concerns. Descriptive statistics were used to report the results. The 102 participants from the three datasets had median age 81 years (SD ±9.84 years); 62% male; 87% white. A total of 107 concerns were reported in the first, open POS/IPOS question seeking the patient{\textquoteright}s main concerns. Of these, 83 (77%) were reflected in the subsequent IPOS/POS closed questions. The high correspondence between the free-text responses and the closed questions indicates that most issues are captured by the POS/IPOS items. In conclusion, the generic versions of POS and IPOS do capture the main problems and concerns of patients with advanced CHF. Minor adaptations and further psychometric validation of POS and IPOS are needed in this population.",
keywords = "Advanced chronic heart failure (advanced CHF), Outcome assessment (Health Care), Palliative care, Patient Health Questionnaire, Secondary analysis",
author = "Anna Oriani and Ping Guo and Amy Gadoud and Lesley Dunleavy and Pauline Kane and Murtagh, {Fliss E.M.}",
year = "2019",
month = nov,
day = "1",
doi = "10.21037/apm.2019.08.10",
language = "English",
volume = "8",
pages = "775--780",
journal = "Annals of Palliative Medicine",
issn = "2224-5820",
publisher = "AME Publishing Company",
number = "5",

}

RIS (suitable for import to EndNote) Download

TY - JOUR

T1 - What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

AU - Oriani, Anna

AU - Guo, Ping

AU - Gadoud, Amy

AU - Dunleavy, Lesley

AU - Kane, Pauline

AU - Murtagh, Fliss E.M.

PY - 2019/11/1

Y1 - 2019/11/1

N2 - There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) are specifically developed to capture the main symptoms and concerns of people severely affected by advanced disease. The aim of this study was to determine whether POS and IPOS captures the main symptoms and concerns self-reported by patients with advanced CHF. A secondary analysis of existing POS/IPOS data collected in three longitudinal studies was conducted. POS and IPOS start with an open-ended question for patients to report their main problems and concerns, followed by subsequent closed questions on a range of symptoms and other concerns. Descriptive statistics were used to report the results. The 102 participants from the three datasets had median age 81 years (SD ±9.84 years); 62% male; 87% white. A total of 107 concerns were reported in the first, open POS/IPOS question seeking the patient’s main concerns. Of these, 83 (77%) were reflected in the subsequent IPOS/POS closed questions. The high correspondence between the free-text responses and the closed questions indicates that most issues are captured by the POS/IPOS items. In conclusion, the generic versions of POS and IPOS do capture the main problems and concerns of patients with advanced CHF. Minor adaptations and further psychometric validation of POS and IPOS are needed in this population.

AB - There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) are specifically developed to capture the main symptoms and concerns of people severely affected by advanced disease. The aim of this study was to determine whether POS and IPOS captures the main symptoms and concerns self-reported by patients with advanced CHF. A secondary analysis of existing POS/IPOS data collected in three longitudinal studies was conducted. POS and IPOS start with an open-ended question for patients to report their main problems and concerns, followed by subsequent closed questions on a range of symptoms and other concerns. Descriptive statistics were used to report the results. The 102 participants from the three datasets had median age 81 years (SD ±9.84 years); 62% male; 87% white. A total of 107 concerns were reported in the first, open POS/IPOS question seeking the patient’s main concerns. Of these, 83 (77%) were reflected in the subsequent IPOS/POS closed questions. The high correspondence between the free-text responses and the closed questions indicates that most issues are captured by the POS/IPOS items. In conclusion, the generic versions of POS and IPOS do capture the main problems and concerns of patients with advanced CHF. Minor adaptations and further psychometric validation of POS and IPOS are needed in this population.

KW - Advanced chronic heart failure (advanced CHF)

KW - Outcome assessment (Health Care)

KW - Palliative care

KW - Patient Health Questionnaire

KW - Secondary analysis

UR - http://www.scopus.com/inward/record.url?scp=85075951585&partnerID=8YFLogxK

U2 - 10.21037/apm.2019.08.10

DO - 10.21037/apm.2019.08.10

M3 - Article

C2 - 31594366

AN - SCOPUS:85075951585

VL - 8

SP - 775

EP - 780

JO - Annals of Palliative Medicine

JF - Annals of Palliative Medicine

SN - 2224-5820

IS - 5

ER -

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