What Is the Health and Well-Being Burden for Parents Living With a Child With ADHD in the United Kingdom?

TY - JOUR

T1 - What Is the Health and Well-Being Burden for Parents Living With a Child With ADHD in the United Kingdom?

AU - Peasgood, Tessa

AU - Bhardwaj, Anupam

AU - Brazier, John E.

AU - Biggs, Katie

AU - Coghill, David

AU - Daley, David

AU - Cooper, Cindy L.

AU - De Silva, Cyril

AU - Harpin, Val

AU - Hodgkins, Paul

AU - Nadkarni, Amulya

AU - Setyawan, Juliana

AU - Sonuga-Barke, Edmund J.S.

PY - 2020/1/1

Y1 - 2020/1/1

N2 - Objective: To explore the burden associated with childhood ADHD in a large observational study. Methods: We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status. Results: We found significant negative impacts of childhood ADHD on parents’/carers’ hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short–Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income. Conclusion: The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.

AB - Objective: To explore the burden associated with childhood ADHD in a large observational study. Methods: We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status. Results: We found significant negative impacts of childhood ADHD on parents’/carers’ hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short–Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income. Conclusion: The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.

KW - ADHD

KW - carers

KW - EQ-5D

KW - parents

KW - Warwick Edinburgh Mental Well-Being Scale (WEMWBS)

KW - well-being

UR - http://www.scopus.com/inward/record.url?scp=85086655724&partnerID=8YFLogxK

U2 - 10.1177/1087054720925899

DO - 10.1177/1087054720925899

M3 - Article

AN - SCOPUS:85086655724

SN - 1087-0547

JO - Journal of Attention Disorders

JF - Journal of Attention Disorders

ER -