‘Where the biological predominates’: Habitus, reflexivity and capital accrual within the field of batten disease

Research output: Chapter in Book/Report/Conference proceedingChapterpeer-review

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Abstract

Much of the empirical work within the sociological study of chronic disabling conditions developed, explicitly or implicitly, as a challenge to the dominance of biomedicine. Alongside the work of disability theorists in reincorporating the body into the study of disability (see for example, Lock et al, 2005; Thomas, 2004; Williams, 1999), this chapter addresses the need to re-evaluate the, often negatively portrayed, contribution of biology and biomedicine to the study of chronic disabling conditions. We draw on Bourdieu’s concepts of field and habitus to chart the overwhelming impact of the biological on the lifeworld of those living with rare, chronically disabling degenerative conditions and their families. The theoretical framework provided by Bourdieu is used to present data from a recent empirical study to advance the view that for those living with such conditions, the biological can causally ‘swamp’ the psychological and the social in an extended and pervasive assault on the lifeworld.

Original languageEnglish
Title of host publicationNew Directions in the Sociology of Chronic and Disabling Conditions: Assaults on the Lifeworld
PublisherBFI Publishing/Palgrave Macmillan
Pages77-105
Number of pages29
ISBN (Electronic)9780230297432
ISBN (Print)9780230222700
DOIs
Publication statusPublished - 1 Jan 2016

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