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Woundcare research for epidermolysis bullosa: designing products with the users

Research output: Contribution to journalArticle

Patricia Grocott, Rebecca Blackwell, Conchita Currie, Elizabeth Pillay, Jane Clapham, Pauline Graham-King, Jennie Hon, Karen Snelson

Original languageEnglish
Pages (from-to)30-35
Number of pages6
JournalDermatological Nursing
Volume12
Issue number1
Publication statusPublished - 1 Mar 2013

King's Authors

Abstract

Background
WEB is a collaboration between people with Epidermolysis Bullosa (EB), carers, clinicians, and industry. Its purpose is to co-design whole body dressing systems with people who live with extensive wounds.
Aims
The aim of this phase of WEB was to develop a dressing retention garment to replace the flat and tubular bandages currently used to hold patch-worked pre-sized and shaped dressings in place.
Methods
A participatory research design was adopted and a model of user engagement in medical device design and development. An n-of-1 design was used to test the performance of the novel garments. Clinical outcomes (TELER data) were measured at the individual and group level. Qualitative data were used to explain the quantitative findings.
Results
Clinically significant improvements were demonstrated in terms of dressing stability, and reduced costs, both time and materials.
Conclusions
WEB demonstrated a partnership approach to working with industry to develop products to meet clinical need, and delivered one component of a novel two layer dressing system. The primary wound contact layer is under development.

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